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retinitispigmentosa · Retinitis Pigmentosa, Ushers and Retinal Diseases
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Reply | Forward Message #5290 of 11067 |
Re: New to Group

-Hi Dianne, welcome. The other more experienced listers will hopefully
be able to help you with your questions.
Eve in Ontario (MD)
Canada

-- In retinitispigmentosa@yahoogroups.com, "thorntondi61265"
<thorntondi61265@y...> wrote:
> Hi. My name is Dianne and I have had rp for years. I was told it
> wouldn't progress much, however it has rapidly this past year. Last
> week I was told I was legally blind and that I was eligible for alot
> of "benefits". .
>
> Thanks for any help someone can give me, or guide me in a direction
> that I should take.
>
> Dianne





Sun Jul 17, 2005 1:58 pm

eve_lowery
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Message #5290 of 11067 |
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Hi. My name is Dianne and I have had rp for years. I was told it wouldn't progress much, however it has rapidly this past year. Last week I was told I was...
thorntondi61265
Offline Send Email
Jul 17, 2005
3:07 am

Hi. My name is Dianne and I have had rp for years. I was told it wouldn't progress much, however it has rapidly this past year. Last week I was told I was...
thorntondi61265
Offline Send Email
Jul 17, 2005
3:08 am

you can apply for social security disability benefits on line at _www.ssa.gov_ (http://www.ssa.gov) . Andrew R. Spiegel, Esquire 3901-A Main Street Second...
PALitigate@...
palitigate
Offline Send Email
Jul 17, 2005
3:16 am

Dianne Call your local Social Security office. You can go into the office or they will mail you the papers to fill out. The letter from your doctor is a good ...
Pjn0110@...
pjn01102000
Offline Send Email
Jul 17, 2005
3:58 am

-Hi Dianne, welcome. The other more experienced listers will hopefully be able to help you with your questions. Eve in Ontario (MD) Canada -- In...
Evelyn Lowery
eve_lowery
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Jul 17, 2005
1:58 pm

Hi my name is Rhonda. I live in Cincinnati, Ohio. I joined this group because my brother has RP. We have been checking into a clinic for holistic medicine...
rhondafrede
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Aug 20, 2005
11:41 am

I have heard of using holistic medicine for almost anything, but I personally haven't tried it. They have used it in dogs too for arthritis, apetite, etc. and...
Jennifer Sauceman
saucijen
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Aug 20, 2005
2:08 pm

_Wellspring Clinic for Holistic Medicine Treating Retinitis Pigmentosis_ (http://www.tcmrp.com/center.htm) Here is the website I found about the Holistic...
ohiolpn02@...
rhondafrede
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Aug 21, 2005
12:52 am

How much do it cost??.. I could find no info in the site. But the results are quite promising .... ohiolpn02@... wrote: _Wellspring Clinic for Holistic...
srinivasu muppala
srinivas1264
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Aug 21, 2005
8:48 am

I imagine the cost probably varies with the treatment you receive since each person is different. ... -- "Never say you don't have enough time.. you have...
Jennifer Sauceman
saucijen
Offline Send Email
Aug 21, 2005
7:06 pm

How much do it cost??.. I could find no info in the site. But the results are quite promising .... ohiolpn02@... wrote: _Wellspring Clinic for Holistic...
srinivasu muppala
srinivas1264
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Aug 21, 2005
8:48 am

The cost is $3800 every 3 months. He treats you as long as you have improvements in your eyesight. Treatment can take up to 2 to 3 years. That doesn't ...
ohiolpn02@...
rhondafrede
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Aug 22, 2005
12:15 am

Hello, I am new to the group and I am looking to talk to people with RP. Please respond if you are interested.... Thanks [Non-text portions of this message...
rod3284
catina.james
Offline Send Email
Jun 28, 2006
2:13 am

Dear Rod, Welcome to the group. I would be happy to talk anytime. What is your background? I am 40 and was diagnosed about 28 years ago. My vision is 20/200...
Shela Pritchard
shela1966
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Jun 28, 2006
2:58 am

hello welcome to the group my name is Dena and I live in KY. I'm 35 with RP but also have vision loss to chemical burns to eyes. Do you have RP also? Tell us...
DENA STARGLE
denlgle
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Jun 28, 2006
3:17 am

ROd3284, Welcome to the group I'm sure you'll fine this list helpful and informative. I'm Chel, it's nice to meet you and all the other new people that have...
Michelle Ryman
michelleannr...
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Jun 28, 2006
3:37 am

I am 32 years old and I was diagnosied with RP when I was 5. I am about to go in for my first ERG test in 2 weeks. I am nervous but at the same time I want...
catina.james
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Jul 4, 2006
2:12 am

yes it is not painful just a little annoying but take some one to talkto as it is helpful Dena..................KY "catina.james" <rod3284@...>...
DENA STARGLE
denlgle
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Jul 4, 2006
4:49 am

How often have you taken the ERG testing and what was the outcome.....--- In retinitispigmentosa@yahoogroups.com, DENA STARGLE ... talkto as it is helpful ... ...
catina.james
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Jul 6, 2006
10:30 pm

You only have to take the test once as long as they get a good reading mine however was unconclusive because students did the tests, but as my other eye DR's...
DENA STARGLE
denlgle
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Jul 7, 2006
12:12 am

Dena, I'm so curious. What this about diet drinks? Niki ... [Non-text portions of this message have been removed]...
Niki Offutt
dotpolka
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Jul 7, 2006
5:54 pm

well I am presently trying to do private research on an article I read about some artifical sweeteners being very bad for your health and it even mentioned...
DENA STARGLE
denlgle
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Jul 7, 2006
7:55 pm

Hi You are welcome to the group.Almost all of us here are with RP or the relatives to the RPs.You feel free to share your experiences,views or problems here ...
Talish Toor
talish_3
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Jun 28, 2006
8:48 am

Hi Talish, Smita here age 29 diagnosed with RP 7 years ago.My parents marriage is a consanguineous one.I am also diagnosed with an auto-immune disorder viz....
smd
atims76
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Jun 28, 2006
9:49 am

Hi Smita, Sorry to hear about your RP,Lupus and your sister's Rp. Anyhow we are bound to bow before God's will. I also hopeful that the days are near when Rp...
Talish Toor
talish_3
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Jun 28, 2006
4:20 pm

Hello, I joined the group a few days ago.We get an update of the various treatments offered and an opportunity to interact with many RP friends.Do feel free to...
atims76
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Jul 4, 2006
4:06 am
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