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retinitispigmentosa · Retinitis Pigmentosa, Ushers and Retinal Diseases
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Stephanie Hackney   Message List  
Reply | Forward Message #4643 of 11067 |
RE: [RetinitisPigmentosa] Stephanie Hackney

Stephaine

There are a lot of people here on the list that are more then happy to talk
to you about RP and what they do to deal with it. Also just to be there
when you want to talk. There are other list out there as well. We have a
very large group of us who all get together.

I am Marc G I live in Los Angeles Calif. I was Diaged at the of 35 (17 years
ago). I am married for 25 years and have a 20 years old daughter. I have
less then 10 degrees FOV and am almost entirely night blind. I have no known
family history of RP

I work full time as an IT manager. and sit ass a tresurer on the board of
Directors for a low vision Prg called The Center for the Psrtially sighted.
I also started a support group in my area So I can meet others with RP and
other VIP in the area.

What I do to deal, is to keep busy, both the RP world and day to day living.
But I guess you could figure that outy by what you have read already.


So now tell us a about yourself.



Thanks for everything
Remember To Tolorate others, care for their needs. Give love to their hearts
& the same will come to you !!
< Marc G. >
52 with RP
mgerberick@...
I Live and Play in L.A. U.S.A.

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Thu Jan 6, 2005 3:41 am

mgerberick
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Message #4643 of 11067 |
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I hope I can talk to other people with this eye disease to either help me to deal with it or to make friends,too. If any one wants to a mail me you can do so...
Stephaine Hackney
deaflepard05
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Jan 6, 2005
2:26 am

Stephaine There are a lot of people here on the list that are more then happy to talk to you about RP and what they do to deal with it. Also just to be there ...
Marc Gerberick
mgerberick
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Jan 6, 2005
3:42 am

Stephanie Hey you have found the right place for RP. We will all be glad to listen to you about any and everything. some have experienced what you are going...
Pjn0110@...
pjn01102000
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Jan 6, 2005
4:11 am
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