retinitispigmentosa : Message: Re: feeling alone

retinitispigmentosa · Retinitis Pigmentosa, Ushers and Retinal Diseases

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Message #10868 of 11063 |

Re: feeling alone

Good Grief, Jean - I hope you at least have a sighted guide walking around in a
manufacturing plant. It sounds extremely dangerous without, at least,
something.

RPGypsy

--- In retinitispigmentosa@yahoogroups.com, Jean-Louis Pretot <jlpretot@...>
wrote:
>

> No cane yet. Tough to get in a manufacturing plant with a white cane don't you
think?
>

Fri Jul 10, 2009 1:13 am

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"rpgypsy" <jennoftheeve@...>

rpgypsy

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Message #10868 of 11063 |

Expand Messages	Author	Sort by Date
I have RP and cataracts and only have centreal vision left.I also have really bad tunnel vision and feel of balence alot.I have a loving wife and children who...	jim james strykerjim41	Jul 6, 2009 8:55 am
Jim.... I am going through the same thing. Kinda feels like noboby understands. Ya it sucks. Hang in there. S pend time with your kids, thats what I do, keeps...	rab5@... kb1lwj	Jul 6, 2009 10:05 am
... Everyone has a cross to bear in life and I guess this is mine....	r_duos	Jul 6, 2009 1:58 pm
It get lonely at times and that why group like these are great. I really like Facebook.com to get the support through there. There are a lot of people out...	larough@... laura_saltla...	Jul 6, 2009 2:54 pm
I understand what you're going through. I'm hard of hearing myself and believe me it is harder for people who have RP and hearing lost than who has RP alone....	Tracylynn124@... tracylynn12412	Jul 6, 2009 4:56 pm
Hi ! Jim James my name is Heidi I just turned fifty, I have rp and coate's disease,rp in both eyes coate's in left, my left eye is totally blind,my right eye...	Heidi Farrell harley4heidi	Jul 8, 2009 3:33 am
Heidi I am 58 , only income to the family.While it is difficult for Family, co-workers to understand the effect of RP, the hearing loss (and tinnitus + out of...	Jean-Louis Pretot jlpretot	Jul 9, 2009 2:18 am
Good Grief, Jean - I hope you at least have a sighted guide walking around in a manufacturing plant. It sounds extremely dangerous without, at least,...	rpgypsy	Jul 10, 2009 1:13 am
HI,, One day at a time,enjoy everything that you can, and have patience with the people who care and mean well but really can't understand. Before my vision...	weblady10	Jul 11, 2009 2:22 pm

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