I understand what you're going through. I'm hard of hearing myself and
believe me it is harder for people who have RP and hearing lost than who has
RP alone. I hate it because I can someone calling me and couldn't find
them. Very frustrating. I've experienced the worst time of my life. I am
claustrophobic in closed space. I had anxiety and panic attack. This is
scary because I have tv in my room and watch tv at night while my husband is
sleeping. I started to panic because I couldn't see anything on the side. I
felt like I was in a rectangle box with a tv in front of me and couldn't g
et out. One time, coming home and it was getting dark. I started having
anxiety because I know it was getting dark. For some reasons, this darkness
is starting to get me. I always tell myself I will be ok. I know anxiety
play a big role in RP. Sucks.

Tracy


In a message dated 7/6/2009 4:55:21 A.M. Eastern Daylight Time,
strykerjim41@... writes:





I have RP and cataracts and only have centreal vision left.I also have
really bad tunnel vision and feel of balence alot.I have a loving wife and
children who are always there for me yet sometimes i feel so alone.I think it
is because as much as they care and educate themselves on RP they truly dont
understand the mental torment of having your world closing in around you.I
aslo have a hearing loss in each ear and really fear that i may have
ushers.





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