It get lonely at times and that why group like these are great. I really like
Facebook.com to get the support through there. There are a lot of people out
there with RP. There is a RP social group on facebook that's been great.

Laura Lee Rough
Salt Lake City, Utah

----- Original Message -----
From: r_duos
To: retinitispigmentosa@yahoogroups.com
Sent: Mon, 6 Jul 2009 13:57:38 +0000 (UTC)
Subject: [RetinitisPigmentosa] Re: feeling alone
























--- In retinitispigmentosa@yahoogroups.com, rab5@... wrote:

>

>

> I have RP also. I was diagnosed in 2007. I seem to have more problems with
my right eye than the left. I am having cataract surgery on that eye tomorrow.
I had three Kenalog injections in that eye in a period of 18 months and the
fluid came back after some time. The doctor seems to think the reason the
Kenalog injections didn't work well is bacause of the cataract. Well, after
tomorrow we will see . There is a chance the fluid will build up again and I
will have to have the Kenalog injections again. I try to keep a positive
attitude but sometimes I do get depressed for a bit. My vision is very
important to me as it is to everyone else. You can buy teeth but you can't buy
your vision back.



Everyone has a cross to bear in life and I guess this is mine.



>

> Jim....

>

> I am going through the same thing. Kinda feels like noboby understands. Ya it
sucks. Hang in there. S pend time with your kids, thats what I do, keeps me
going. What state are you in? I am in CT. Hang in there. There are a lot of good
people in this group who are going through the same thing and are more than
willing to listen.

>

> Keep in touch

>

> be well

>

> Rob

> ----- Original Message -----

> From: "jim james"

> To: retinitispigmentosa@yahoogroups.com

> Sent: Monday, July 6, 2009 4:54:48 AM GMT -05:00 US/Canada Eastern

> Subject: [RetinitisPigmentosa] feeling alone

>

>

>

>

>

>

>

>

> I have RP and cataracts and only have centreal vision left.I also have really
bad tunnel vision and feel of balence alot.I have a loving wife and children who
are always there for me yet sometimes i feel so alone.I think it is because as
much as they care and educate themselves on RP they truly dont understand the
mental torment of having your world closing in around you.I aslo have a hearing
loss in each ear and really fear that i may have ushers.

>

>

>

>

> [Non-text portions of this message have been removed]

>




























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