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retinitispigmentosa · Retinitis Pigmentosa, Ushers and Retinal Diseases

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A place for people with Retinal Degnerative diseases. Retinitis Pigmentosa, Ushers Syndrome, Macular Degeneration and others.

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Re: feeling alone
Good Grief, Jean - I hope you at least have a sighted guide walking around in a manufacturing plant. It sounds extremely dangerous without, at least,
Posted - Fri Jul 10, 2009 1:13 am
rpgypsy
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Re: feeling alone
Heidi I am 58 , only income to the family.While it is difficult for Family, co-workers to understand the effect of RP, the hearing loss (and tinnitus + out of
Posted - Thu Jul 9, 2009 2:18 am
Jean-Louis Pretot
jlpretot
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Re: feeling alone
Hi ! Jim James my name is Heidi I just turned fifty, I have rp and coate's disease,rp in both eyes coate's in left, my left eye is totally blind,my right eye
Posted - Wed Jul 8, 2009 3:33 am
Heidi Farrell
harley4heidi
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positive attitude
Sometimes it is hard to always keep a positive attitude. There are many days when people who have no physical problems have "down days" so it is understandable
Posted - Mon Jul 6, 2009 6:06 pm
Lenny McHugh
lenny_mchugh
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Reply to Jim
Jim, altho I don't understand what you're going thru I too, have similar vision and hearing. I try to keep busy doing things that brings me pleasure and
Posted - Mon Jul 6, 2009 5:36 pm
CountessofAZ@...
angelica_85277
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 36 50 47 59 49 12 11
2008 231 147 146 51 37 44 12 58 120 97 57 35
2007 113 90 172 127 96 98 48 61 58 57 47 96
2006 283 183 294 219 332 360 139 132 112 78 78 88
2005 161 63 133 123 43 120 111 164 142 194 165 151
2004 60 82 86 124 113 118 49 118 81 104 200 155
2003 173 55 120 130 135 110 142 54 56 84 158 46
2002 70 92 82 36 29 46 43 62 45 60 58 72
2001 71 94 69 60 112 55 97 237 72 39 32 29
2000 56 34 40 45 17 39 10 66 69 47
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