retinitispigmentosa : Retinitis Pigmentosa, Ushers and Retinal Diseases

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A place for people with Retinal Degnerative diseases. Retinitis Pigmentosa, Ushers Syndrome, Macular Degeneration and others.

Re: feeling alone Good Grief, Jean - I hope you at least have a sighted guide walking around in a manufacturing plant. It sounds extremely dangerous without, at least, Posted - Fri Jul 10, 2009 1:13 am	rpgypsy Offline Send Email
Re: feeling alone Heidi I am 58 , only income to the family.While it is difficult for Family, co-workers to understand the effect of RP, the hearing loss (and tinnitus + out of Posted - Thu Jul 9, 2009 2:18 am	Jean-Louis Pretot jlpretot Offline Send Email
Re: feeling alone Hi ! Jim James my name is Heidi I just turned fifty, I have rp and coate's disease,rp in both eyes coate's in left, my left eye is totally blind,my right eye Posted - Wed Jul 8, 2009 3:33 am	Heidi Farrell harley4heidi Offline Send Email
positive attitude Sometimes it is hard to always keep a positive attitude. There are many days when people who have no physical problems have "down days" so it is understandable Posted - Mon Jul 6, 2009 6:06 pm	Lenny McHugh lenny_mchugh Offline Send Email
Reply to Jim Jim, altho I don't understand what you're going thru I too, have similar vision and hearing. I try to keep busy doing things that brings me pleasure and Posted - Mon Jul 6, 2009 5:36 pm	CountessofAZ@... angelica_85277 Offline Send Email
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