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rediscoveringhopewithinhht · Rediscovering Hope within HHT - Hereditary Hemorrhagic Telangiectasia

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Group Information

  • Members: 226
  • Category: Health Care
  • Founded: Oct 10, 2000
  • Language: English
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Description

JOIN US, you are no longer alone! This Community is dedicated to all who suffer with Hereditary Hemorrhagic Telangiectasia (AKA Osler-Weber-Rendue), a genetic disorder that manifests itself in so many ways. Here, you will find Links to HHT and related web sites, information on the latest research, as well as a place to meet people who, like you, battle this disorder. Together we can Rediscover Hope.
Pastor Bruce and Pat

Most Recent Messages

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Re: Finger Bleeding!!!
Hi, you can have those "spots" (telangiectases) treated with a laser. Have you had a proper HHT workup at an HHT centre? cheers, Paddy
Posted - Tue Apr 30, 2013 7:15 pm
P.L. Campbell
paddyc39
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Finger Bleeding!!!
Well today i eperienced what my mom told me about! only my spot is by the corner of my cuticle. my mom had one on the tip of her endex finger. It squirted at
Posted - Tue Apr 30, 2013 7:01 pm
imnartist.geo
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Finger Bleeding!!!
Well today i eperienced what my mom told me about! only my spot is by the corner of my cuticle. my mom had one on the tip of her endex finger. It squirted at
Posted - Tue Apr 30, 2013 6:44 pm
imnartist.geo
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Finger Bleeding!!!
Well today i eperienced what my mom told me about! only my spot is by the corner of my cuticle. my mom had one on the tip of her endex finger. It squirted at
Posted - Tue Apr 30, 2013 6:36 pm
imnartist.geo
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Re: what are safe pain.medications.besides.oxycodone.
I figured if i want tylenol with it i can take it. i usually run out and go without for a week and get it refilled. he put me on nurontin for pain.it
Posted - Tue Apr 30, 2013 6:33 pm
imnartist.geo
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2013 3 1 5
2012 13 9 76 11 48 13 24 13 22 17 19 10
2011 30 18 34 50 56 34 13 14 6 26 28 22
2010 83 40 81 33 65 27 13 7 77 24 26 31
2009 39 15 20 28 35 29 67 101 10 48 50 53
2008 71 108 115 229 111 28 42 74 83 82 111 55
2007 40 27 194 67 27 47 39 116 94 29 40 63
2006 70 73 218 63 39 138 160 95 53 101 66 109
2005 203 132 22 65 20 19 51 84 29 17 70 17
2004 6 21 22 1 6 10 52 34 86 54 22 20
2003 6 3 4 10 23 21 5
2002 6 8 9 3 2 14 8 6 37 4
2001 52 22 20 3 12 7 6 1 9 19 17 18
2000 44 13 10

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