All, The next webinar will be on November 19th at 8PM eastern time. (8PM EST, 7PM Central, 6PM Mountain and 5PM Pacific time) The title is The Truth about...
Hi, everyone! I just wanted to thank our chapters for their efforts to help serve the families in their state. Tennessee, Texas and the Carolinas have...
Micah did this quiet often when he was younger. He has since outgrown just about all of the tics. He is on Vyvanse now for ADD. Don't know if that is what...
Hi Diane, I feel for you; our son Nolan (age 5) also has had many behavioral/social, etc. problems at school and it can be heartbreaking. Nolan has had some...
9/11/2008 Hi Diane, I'm not a behaviorist or diagnostician, but you may want to check into some sensory therapy and possibly a weighted vest to see if that...
Hello everyone, Just wondering if anyone has experienced "tics' with thier children.? Reagan (5 PWS/UPD) started to have uncontrollable shoulder shrugging over...
Tina, Patrick,age 10, may be having seizures. What happens when Kevin has a seizure? Patrick's seem to happen when he's trying to wake up. It's like he...
Thanks, I had always thought Micah showed many Autism traits, but never really thought about getting the dx for it. Just figured it was the PWS showing up. It...
I'm gonna have to look that one up. We will be having another ARD shortly to get the Autism dx added to it. Thanks, Cindy ... From: Paul & Robin Barrett To:...
Hi Cindy, You're welcome. At first I felt a little uncomfortable playing up the autism piece since Nolan's absolute primary Dx is PWS, but since so many...
Right now the "gold standard" treatment for autism is Applied Behavior Analysis, or ABA. It is very one-on-one labor intensive, so it is expensive. Check it...
Paul & Robin Barrett
paulbarrett@...
Aug 20, 2008 10:47 pm
115
Wow, thanks for all the info. Will check into a Texas group. Cindy ... From: JenniferK To: pws-autism@yahoogroups.com Sent: Wednesday, August 20, 2008 1:58 PM ...
Micah is already in a kinda self contained class. Their five or maybe six other kids. With two aids and the teacher. At least that is what he has had since 2nd...
HEY CINDY, IT'S ME , TINA I AM IN THIS GROUP ALSO.. YES WE FOUND OUT KEVIN HAS AUTISM TRAITS.. KEVIN IS PWS UPD BUT HAS MR. ON THE MR IS PROBABLY BECAUSE HE...
TTerr100@...
Aug 20, 2008 6:24 pm
109
We too added the autism spectrum diagnosis to April's IEP a couple years ago. (She just graduated from high school last May.) She too is high-functioning and...
Jill Boughton
jillaprilb@...
Aug 20, 2008 6:24 pm
108
Hey Cindy, With Matthew we're able to get him in a RNC(reduced Numbers Class-Autistic class. Many of the kids go out and are main streamed but they get that...
Hi, I think some of you know me. I am Cindy and Micah is my son. We are in Santa Fe, TX. Micah just had some testing after school was out this past June. The...
NEW YORK TIMES June 28, 2008 Experts to Discuss a Puzzling Autism Case, as a Second Case Looms By GARDINER HARRIS Federal health officials on Sunday will call...
Glad to hear from you. Give us all some follow up on how it goes! Linda M. Gourash, MD Developmental and Behavioral Pediatrics Pittsburgh Partnership, ...
Linda Gourash
Wfgourash@...
May 27, 2008 9:36 pm
104
Thanks, Dr. Gourash! Those web sites look interesting. We had a vibrating chew toy when Patrick was little that he seemed to like. ... From: Linda Gourash ...
You might want to try chewy tubes: http://www.affordabletherapysolutions.com/index.asp?pageaction=viewcats ...
Linda Gourash
Wfgourash@...
May 24, 2008 11:26 am
102
Hi Holly, I'm Terri - Mom to Patrick, age 10. He has severe autism so he's completely non-verbal, cognitively age one and still in diapers. Patrick grinds...
Hi everyone - I am new to this site. I have a 15 year old daughter with PWS and autism. She is grinding her teeth at such a great rate that her dentist said by...
Nothing more than what I was told was customary and ordinary because of PWS. He'd get diarrhea if he binged, so that's not something he would alert me to. We...
Was David having diarrhea and other intestinal problems before this diet? Sandy <sandsinteriors@...> wrote: We haven't really modified the...
Jill Boughton
jillaprilb@...
Feb 26, 2008 8:50 pm
98
We haven't really modified the diet for David as far as further restrictions or exchanges. He eats honey, butter, fruit juice--as per SCD, and he did not have...
Did you modify the diet for PWS? For example, are you using honey or not? Do you measure quantities of food for him? Sandy <sandsinteriors@...> wrote:...
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