Hello, My name is Diane Seely. My four year old son Reagan has PWS/UPD, and shows some characteristics of PDD. We would like to join this group. Thank You, ...
Diane, My son Patrick, age 9, is UPD PWS with autism. What types of things does Reagan display? Does he talk? Patrick is completely non-verbal & still in...
Terri, Thank you for responding.? Over the past year we have noticed a behavior pattern with Reagan that really concerns us.? It seems as he cannot express his...
Hi Diane - How old is Reagan? Mine is 23yo--he'd love you for a parent; I'm the absolute worst when it comes to sticking to a plan and I drive my son nuts....
Sandy, We have always used as much organic foods for Reagan as possible.? When he was around a year old, we were giving him Fruit20 (a flavored water...
Hi All, I'm sending this to you in case you are military and have a dual diagnosis of autism and PWS. For those of you not in the military you can find the...
Sandy, this is fascinating. I'd like to know a bit more, e.g. how much does David weigh? What diet was he on before? We've had a lot of success with the...
Jill Boughton
jillaprilb@...
Feb 15, 2008 8:14 pm
96
Hi Jill. I'll apologize in advance for the length of this reply, but here goes: Unfortunately, when talking about how well David was doing, I should have...
Did you modify the diet for PWS? For example, are you using honey or not? Do you measure quantities of food for him? Sandy <sandsinteriors@...> wrote:...
Jill Boughton
jillaprilb@...
Feb 25, 2008 11:18 pm
98
We haven't really modified the diet for David as far as further restrictions or exchanges. He eats honey, butter, fruit juice--as per SCD, and he did not have...
Was David having diarrhea and other intestinal problems before this diet? Sandy <sandsinteriors@...> wrote: We haven't really modified the...
Jill Boughton
jillaprilb@...
Feb 26, 2008 8:50 pm
100
Nothing more than what I was told was customary and ordinary because of PWS. He'd get diarrhea if he binged, so that's not something he would alert me to. We...
Hi everyone - I am new to this site. I have a 15 year old daughter with PWS and autism. She is grinding her teeth at such a great rate that her dentist said by...
Hi Holly, I'm Terri - Mom to Patrick, age 10. He has severe autism so he's completely non-verbal, cognitively age one and still in diapers. Patrick grinds...
You might want to try chewy tubes: http://www.affordabletherapysolutions.com/index.asp?pageaction=viewcats ...
Linda Gourash
Wfgourash@...
May 24, 2008 11:26 am
104
Thanks, Dr. Gourash! Those web sites look interesting. We had a vibrating chew toy when Patrick was little that he seemed to like. ... From: Linda Gourash ...
Glad to hear from you. Give us all some follow up on how it goes! Linda M. Gourash, MD Developmental and Behavioral Pediatrics Pittsburgh Partnership, ...
Linda Gourash
Wfgourash@...
May 27, 2008 9:36 pm
106
NEW YORK TIMES June 28, 2008 Experts to Discuss a Puzzling Autism Case, as a Second Case Looms By GARDINER HARRIS Federal health officials on Sunday will call...
Hi, I think some of you know me. I am Cindy and Micah is my son. We are in Santa Fe, TX. Micah just had some testing after school was out this past June. The...
Hey Cindy, With Matthew we're able to get him in a RNC(reduced Numbers Class-Autistic class. Many of the kids go out and are main streamed but they get that...
We too added the autism spectrum diagnosis to April's IEP a couple years ago. (She just graduated from high school last May.) She too is high-functioning and...
Jill Boughton
jillaprilb@...
Aug 20, 2008 6:24 pm
110
HEY CINDY, IT'S ME , TINA I AM IN THIS GROUP ALSO.. YES WE FOUND OUT KEVIN HAS AUTISM TRAITS.. KEVIN IS PWS UPD BUT HAS MR. ON THE MR IS PROBABLY BECAUSE HE...
TTerr100@...
Aug 20, 2008 6:24 pm
111
Our son Nolan has a dual Dx of PDD-NOS (autism spectrum) along with PWS. He has an IQ in the normal range. The school seems to be taking notice and...
Micah is already in a kinda self contained class. Their five or maybe six other kids. With two aids and the teacher. At least that is what he has had since 2nd...
Wow, thanks for all the info. Will check into a Texas group. Cindy ... From: JenniferK To: pws-autism@yahoogroups.com Sent: Wednesday, August 20, 2008 1:58 PM ...
Right now the "gold standard" treatment for autism is Applied Behavior Analysis, or ABA. It is very one-on-one labor intensive, so it is expensive. Check it...
Paul & Robin Barrett
paulbarrett@...
Aug 20, 2008 10:47 pm
117
Hi Cindy, You're welcome. At first I felt a little uncomfortable playing up the autism piece since Nolan's absolute primary Dx is PWS, but since so many...
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