Is you son UPD? My daughter is UPD and I was reading that Autism is seen in 25.3% of children with PWS and that UPD at greater risk for autism. If you have a...
Hi all! This week the PWSA (USA) office is sending out the attached survey to people who had responded Yes to Autism and PWS. The office was going to mail...
Hello, My son is 7 and was diagnosed with autism at age 2.5 and then PWS at age 5. The signs/symptoms of both are very similar and the distinction between the...
My son will be 7 next month. He lost all eye contact and interest in people and toys around age 15 months.He behaved as though he were deaf and blind. He is a...
Paul & Robin Barrett
paulbarrett@...
Sep 20, 2007 1:25 am
84
if I may, I have a friend who has 3 children two of which have autism. She has to lock up her kitchen just as we do to prevent her 2 children from getting any...
I will also add the fact that Jacob (age 10) does a lot of stimming behaviors (sitting and twirling toy cars, photos, cards, etc.) and rocking that I dont see...
What about not liking to be touched in anyway unless you tell them what your going to do and even that don't work. And what about listening to TV all the way...
Yes, Jacob doesn't react well to touch unless he initiates it and only watches tv (tivo) in fast forward or rewind. ... From: sarah <spoiledsarah25@...> ...
Hello, My name is Diane Seely. My four year old son Reagan has PWS/UPD, and shows some characteristics of PDD. We would like to join this group. Thank You, ...
Diane, My son Patrick, age 9, is UPD PWS with autism. What types of things does Reagan display? Does he talk? Patrick is completely non-verbal & still in...
Terri, Thank you for responding.? Over the past year we have noticed a behavior pattern with Reagan that really concerns us.? It seems as he cannot express his...
Hi Diane - How old is Reagan? Mine is 23yo--he'd love you for a parent; I'm the absolute worst when it comes to sticking to a plan and I drive my son nuts....
Sandy, We have always used as much organic foods for Reagan as possible.? When he was around a year old, we were giving him Fruit20 (a flavored water...
Hi All, I'm sending this to you in case you are military and have a dual diagnosis of autism and PWS. For those of you not in the military you can find the...
Sandy, this is fascinating. I'd like to know a bit more, e.g. how much does David weigh? What diet was he on before? We've had a lot of success with the...
Jill Boughton
jillaprilb@...
Feb 15, 2008 8:14 pm
96
Hi Jill. I'll apologize in advance for the length of this reply, but here goes: Unfortunately, when talking about how well David was doing, I should have...
Did you modify the diet for PWS? For example, are you using honey or not? Do you measure quantities of food for him? Sandy <sandsinteriors@...> wrote:...
Jill Boughton
jillaprilb@...
Feb 25, 2008 11:18 pm
98
We haven't really modified the diet for David as far as further restrictions or exchanges. He eats honey, butter, fruit juice--as per SCD, and he did not have...
Was David having diarrhea and other intestinal problems before this diet? Sandy <sandsinteriors@...> wrote: We haven't really modified the...
Jill Boughton
jillaprilb@...
Feb 26, 2008 8:50 pm
100
Nothing more than what I was told was customary and ordinary because of PWS. He'd get diarrhea if he binged, so that's not something he would alert me to. We...
Hi everyone - I am new to this site. I have a 15 year old daughter with PWS and autism. She is grinding her teeth at such a great rate that her dentist said by...
Hi Holly, I'm Terri - Mom to Patrick, age 10. He has severe autism so he's completely non-verbal, cognitively age one and still in diapers. Patrick grinds...
You might want to try chewy tubes: http://www.affordabletherapysolutions.com/index.asp?pageaction=viewcats ...
Linda Gourash
Wfgourash@...
May 24, 2008 11:26 am
104
Thanks, Dr. Gourash! Those web sites look interesting. We had a vibrating chew toy when Patrick was little that he seemed to like. ... From: Linda Gourash ...
Glad to hear from you. Give us all some follow up on how it goes! Linda M. Gourash, MD Developmental and Behavioral Pediatrics Pittsburgh Partnership, ...
Linda Gourash
Wfgourash@...
May 27, 2008 9:36 pm
106
NEW YORK TIMES June 28, 2008 Experts to Discuss a Puzzling Autism Case, as a Second Case Looms By GARDINER HARRIS Federal health officials on Sunday will call...
Hi, I think some of you know me. I am Cindy and Micah is my son. We are in Santa Fe, TX. Micah just had some testing after school was out this past June. The...
Hey Cindy, With Matthew we're able to get him in a RNC(reduced Numbers Class-Autistic class. Many of the kids go out and are main streamed but they get that...
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