PWSA (USA) has been getting many calls and emails about the Swine Flu and those with PWS. We have consulted our experts on this subject and have posted a...
All, The next webinar will be on November 19th at 8PM eastern time. (8PM EST, 7PM Central, 6PM Mountain and 5PM Pacific time) The title is The Truth about...
Hi, everyone! I just wanted to thank our chapters for their efforts to help serve the families in their state. Tennessee, Texas and the Carolinas have...
Hello everyone, Just wondering if anyone has experienced "tics' with thier children.? Reagan (5 PWS/UPD) started to have uncontrollable shoulder shrugging over...
Tina, Patrick,age 10, may be having seizures. What happens when Kevin has a seizure? Patrick's seem to happen when he's trying to wake up. It's like he...
Hi, I think some of you know me. I am Cindy and Micah is my son. We are in Santa Fe, TX. Micah just had some testing after school was out this past June. The...
NEW YORK TIMES June 28, 2008 Experts to Discuss a Puzzling Autism Case, as a Second Case Looms By GARDINER HARRIS Federal health officials on Sunday will call...
Hi everyone - I am new to this site. I have a 15 year old daughter with PWS and autism. She is grinding her teeth at such a great rate that her dentist said by...
Hi All, I'm sending this to you in case you are military and have a dual diagnosis of autism and PWS. For those of you not in the military you can find the...
Hello, My name is Diane Seely. My four year old son Reagan has PWS/UPD, and shows some characteristics of PDD. We would like to join this group. Thank You, ...
Hello, My son is 7 and was diagnosed with autism at age 2.5 and then PWS at age 5. The signs/symptoms of both are very similar and the distinction between the...
Hello: My name is Milly and my daugther is 7 1/2 months (PWS/UPD). She is a 32 week premature baby. She is not in GH yet. I am a little concerned because she...
Renee, I was hoping you were closer! It would be nice to have a dual diagnosis child near us. Our children are about the same age. I don't go to the PWSA...
Ivy, That's fine if you forward on my message. I'm sure Dr. Merlin Butler already knows this as he is Patrick's dr. at Children's Mercy Hopsital in KC, MO...
Hi, I'm new to this group. I belong to the pws group. Bryce is 8 and has pws. I have been doing some reading and am wondering about Bryce and his anger...
My 6 1/2 month old baby girl with PWS(UPD) is arching her back a lot. She only does this when she is awake. When she is lying on bed she pulls her head...
Hi and Happy Spring Everyone! I am posting to see if anyone has any helpful suggestions for me regarding potty training and bruxism: Trevor is still in diapers...
Hi Everyone, I've been thinking lately about education/school options for my son J.R. who is almost 8. I'd love to hear what everyone is doing regarding...
Hi Lin, I'm not sure you will remember me; we spoke by phone about 3 years ago when you had recently moved to AZ and we were contemplating a move from CT to...
Hi Kerry: I live in Long Island, New York, and my son (in the 5th grade) was in a self-contained program in our local school district but was removed because...
PWS SCHOOL EDUCATION DVD!! NOW AVAILABLE: Prader-Willi Syndrome Association (USA) (PWSA (USA)) and Prader-Willi California Foundation (PWCF) are proud to...
11/28/2006 Hi Kerry, Jason, after 3 years of pre-school is also in his second year of morning 1/2 day Kindergarten with a 1 on 1 paraprofessional. Last year,...
Good Search A new search engine (like Google or Yahoo) works the same as all the others, but for every search you do on the web, you raise a penny for PWSA...
Dear Family and Friends, Wow…can you feel the love?! It is a busy end of year for PWSA with more stupendous fundraising efforts soon to occur and some still...
Alex is 19, and we're beginning to deal with his future. I have several questions: 1. The doctor wants to start him on testosterone for his bones. Alex ...
A post from Jodi O'Sullivan Dear Families and Friends, In the most recent past months, PWSA has been honored by many friends and families who have held...
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