Hi , I am Tina Territo . Have a son Kevin 23 years old with PWS and has some traits of autism. Was diagnosed by his neuro and his past school board ...
Hi Tina, That is a terrific post! I have a very similar story with Alex. Alex is 19, speaks in 2 to 3 word sentences, reverses his pronouns (says,"You want a...
Hi all My son Trevor is 16 and also has PW with UPD. He's almost 5'4" inches tall and 130 pounds. Trevor food issues have almost always been more focused on ...
... grown ... the ... disorder? ... Hi, Aileen. Alex is on GH and behaves just fine. On the other hand, I've heard some parents of kids with behavior problems...
Hello, Aileen Growth hormone (HGH) has had no clear effect on behavior one way or the other. I am reluctant to start it on individuals whose behavior requires...
Wfgourash@...
Aug 7, 2006 2:17 am
7
Hi! I'm new here & would like to introduce my son. Patrick is 8 years old with UPD PWS & autism. Patrick would play somewhat appropriately & said a few words...
Hi Terri, Welcome to the group! It's nice to hear about Patrick. My son is both very similar, and very different. Alex is also autistic but very loving. He...
I thought this might interest people in this group: http://www.nichd.nih.gov/new/releases/autism_affects_brain.cfm It is a news release from the National...
September Events/Efforts Dear Families and Friends, Here is a reminder and new posting of some of the events/efforts happening in September to support PWSA....
Alex is 19, and we're beginning to deal with his future. I have several questions: 1. The doctor wants to start him on testosterone for his bones. Alex ...
Hi everyone, My son J.R. is 7 years old, P-WS Maternal Disomy and has had the secondary diagnosis of Austism since he was 2 years old. J.R. is completely ...
Kerry, I toilet-trained Alex using a book by Fox and Asrin. Can't remember the title, but they wrote a book on toilet training people with mental retardation....
Kerry, Hello! We met three years ago when Reagan was first born. I have had the priveledge of meeting J.R., he is a very sweet boy. Some of the things that...
Dear Diane, Thank you for this description! Your child's behavior illustrates perfectly the distinction between "ravenously hungry" and lack of satiety. There...
Wfgourash@...
Sep 16, 2006 11:34 am
18
Linda, this is a fascinating distinction that matches my experience EXCEPT it doesn't explain a child getting up in the middle of the night to forage for food,...
Jill Boughton
jillaprilb@...
Sep 18, 2006 9:06 pm
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A post from Jodi O'Sullivan Dear Families and Friends, In the most recent past months, PWSA has been honored by many friends and families who have held...
I believe that the food seeking is driven by the pleasure drive which is a very powerful circuit of neurons stimulated by food, drugs, sex etc. I do not ...
Wfgourash@...
Oct 10, 2006 3:42 am
21
Dear Family and Friends, Wow…can you feel the love?! It is a busy end of year for PWSA with more stupendous fundraising efforts soon to occur and some still...
Good Search A new search engine (like Google or Yahoo) works the same as all the others, but for every search you do on the web, you raise a penny for PWSA...
Hi Everyone, I've been thinking lately about education/school options for my son J.R. who is almost 8. I'd love to hear what everyone is doing regarding...
Hi Kerry: My son Jacob is almost 10 years old and in 4th grade. He has been in a collaborative since kindergarten. Merrimack Education Collaborative in...
11/28/2006 Hi Kerry, Jason, after 3 years of pre-school is also in his second year of morning 1/2 day Kindergarten with a 1 on 1 paraprofessional. Last year,...
fetskosv@...
Nov 28, 2006 2:06 pm
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PWS SCHOOL EDUCATION DVD!! NOW AVAILABLE: Prader-Willi Syndrome Association (USA) (PWSA (USA)) and Prader-Willi California Foundation (PWCF) are proud to...
Hi Kerry: I am keeping my children at home and plan to home school, but they are only ages 4 and 5, so I have not formally filled out the paperwork to home...
Hi Kerry: I am keeping my children at home and plan to home school, but they are only ages 4 and 5, so I have not formally filled out the paperwork to home...
Hi Kerry: I am keeping my children at home and plan to home school, but they are only ages 4 and 5, so I have not formally filled out the paperwork to home...
Hi Kerry: I am keeping my children at home and plan to home school, but they are only ages 4 and 5, so I have not formally filled out the paperwork to home...
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