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Reply | Forward Message #92 of 145 |
Re: [pws-autism] Re: PWS-PDD

Sandy,

We have always used as much organic foods for Reagan as possible.  When he was around a year old, we were giving him Fruit20 (a flavored water drink) that has splenda in it.  We noticed a difference in behavior when he did not have the drink. Also, he came home from school one day just all wound up - turns out that he had yogurt for snack that day that had splenda.  I began to see clearly that different foods effected his behavior.  We have been "fine tuning" this diet over the last two years. It is a slow process as we are making the changes one at a time and then wait & see if there is a change in behavior.  We don't have a Nutrionist, we are in the process of looking for one.  But, we have journaled his caloric intake daily since he was born.  Not to restrict calories, but just to know how much he eats in one day, and mostly to control portion size. (He hardly ever eats over 1036 cal a day).  So, his "diet" is just one of choice/process of elimnation.  By the way we also just started a new supplement called Coromega (we found it at Whole Foods) it was recommended by some of the newer moms on the 0-5 support group, and I have noticed a big change in his balance, speech and it seems to make his mind is sharper.  We do limit the amount of bread/crackers that he gets.  I found a bread that has no fructose corn syrup, the downside is that is higher in calories than lite wheat bread (Kroger brand) so we give him just one slice for a p, b & j.  We also measure of the pb & j.  One Tbsp of each, which is alomst too much for just one slice of bread... still "fine tuning".  Almost all crackers/gr. crackers have High Fructose Corn Syrup - so we buy him apple cinnamon rice cakes.  No sugar jelly, organic pb, no sugar applesauce, etc.  Hope this info  hepls.


Diane Seely




-----Original Message-----
From: sandsinteriors2002 <sandsinteriors@...>
To: pws-autism@yahoogroups.com
Sent: Tue, 8 Jan 2008 7:10 pm
Subject: [pws-autism] Re: PWS-PDD

Hi Diane - How old is Reagan? Mine is 23yo--he'd love you for a
parent; I'm the absolute worst when it comes to sticking to a plan and
I drive my son nuts. I've just turned my appt calendar over to him
these days and he deals with it. When he has no control, he doesn't
have meltdowns, but he will go to sleep.

I have a question for you about your diet routine. My friend's son has
autism (my son autistic-like symptoms) and we're all going to start a
wonderful diet in 3 days called SDC "Specific Carbohydrate Diet."
Sounds a lot like what you've done. Do you mind telling me more about
your experience?

Sandy

--- In pws-autism@yahoogroups.com, rodise6@... wrote:
>


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Wed Jan 9, 2008 3:41 pm

reaganseely
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Message #92 of 145 |
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Hello, My name is Diane Seely. My four year old son Reagan has PWS/UPD, and shows some characteristics of PDD. We would like to join this group. Thank You, ...
reaganseely
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Jan 7, 2008
6:07 pm

Diane, My son Patrick, age 9, is UPD PWS with autism. What types of things does Reagan display? Does he talk? Patrick is completely non-verbal & still in...
Terri & Howard Schlange
terri66801
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Jan 8, 2008
10:24 am

Terri, Thank you for responding.? Over the past year we have noticed a behavior pattern with Reagan that really concerns us.? It seems as he cannot express his...
rodise6@...
reaganseely
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Jan 8, 2008
3:34 pm

Hi Diane - How old is Reagan? Mine is 23yo--he'd love you for a parent; I'm the absolute worst when it comes to sticking to a plan and I drive my son nuts....
sandsinteriors2002
sandsinterio...
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Jan 9, 2008
10:39 am

Sandy, We have always used as much organic foods for Reagan as possible.? When he was around a year old, we were giving him Fruit20 (a flavored water...
rodise6@...
reaganseely
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Jan 9, 2008
11:28 pm
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