-------------- Original message --------------
From: "boyle_ivy" <drsboyle@...>

--- In pws-autism@yahoogroups.com, "Terri & Howard Schlange"
<familyof4@...> wrote:
>
> Renee,
>
> I was hoping you were closer! It would be nice to have a dual
diagnosis child near us. Our children are about the same age. I
don't go to the PWSA Conferences anymore because I don't feel like I
fit in that well with all the other problems of autism.
>
> Terri
> Mom to Patrick, 9 with PWS, and Eric, age 12
>
Terri,
I hope you don't mind if I forward this last post to the national
office and the clinical board, for emphasis. I have been telling
them that there is an entire group out there with dual diagnosis
kids, and that they are not coming to the meetings because their kids
look so different from the others. You stated it perfectly, and I'm
sure many people feel the way you do.
In fact, that is why PWSAUSA started t his group, and is becoming
quite interested now in our dual diagnosis kids. Some studies will
be beginning soon, to look at our group.

Ivy
Mother of Alex, age 20, with PWS and autism, and group moderator.