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Educational Options for children with P-WS and Autism   Message List  
Reply | Forward Message #41 of 145 |
Re: [pws-autism] Re: Educational Options for children with P-WS and Autism

Lin,
 
Patrick didn't give much eye contact until he started having caregivers 12 hours a day paid for by the State of Kansas when he was age 5.  Because he's so severe, he qualified.  The CDDO is trying to reduce our 12 hours per day at the time, but we are fighting them. 
 
After trying many holistic approaches to Patrick's sleep, he is now on Risperdal.  Otherwise, Patrick will consistently get up at 3:30 in the morning & stay awake the rest of the day.  He was really crabby then because he was so tired.  We also give him 4 t. of Benadryl as part of his sleeping regiment.  I also do that occassionally during the day when he's crabby.  It calms him down.
 
When Patrick gets upset, he used to bang his head on the wall or floor.  He now hits his head with his open hand when he's upset or stomps his foot.  I believe this would go away if he could speak.
 
An interesting book on echoalic autism (repeats back what you say, shows, etc.) is Nobody Nowhere by Donna Williams.  Donna wrote the book & gave it to her psychiatrist so he could tell her what was wrong with her.  Donna didn't realize words had meaning until she was age 9.  http://www.amazon.com/Nobody-Nowhere-Extraordinary-Autobiography-Autistic/dp/0380722178/ref=pd_bbs_sr_1/103-2588110-4867829?ie=UTF8&s=books&qid=1175283774&sr=8-1
 
Temple Grandin's book, Thinking in Pictures, is also interesting.  http://www.amazon.com/Thinking-Pictures-Expanded-Life-Autism/dp/0307275655/ref=cm_lmf_tit_5_rsrsrs0/103-2588110-4867829  She could understand words, but couldn't speak until she was older.  I feel Patrick fits in this category, but can't convey it.
 
I have also attached an article about Tito, an autistic boy from India. 
 
Terri Schlange


Fri Mar 30, 2007 7:48 pm

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Hi Everyone, I've been thinking lately about education/school options for my son J.R. who is almost 8. I'd love to hear what everyone is doing regarding...
Kerry Headley
kerryheadley...
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Nov 24, 2006
7:21 pm

Hi Kerry: My son Jacob is almost 10 years old and in 4th grade. He has been in a collaborative since kindergarten. Merrimack Education Collaborative in...
renee brogan
aimsbestprices
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Nov 28, 2006
12:17 am

Hi Kerry: I am keeping my children at home and plan to home school, but they are only ages 4 and 5, so I have not formally filled out the paperwork to home...
linplus2
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Mar 29, 2007
10:43 am

Hi Kerry: I am keeping my children at home and plan to home school, but they are only ages 4 and 5, so I have not formally filled out the paperwork to home...
linplus2
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Mar 29, 2007
10:44 am

Hi Kerry: I am keeping my children at home and plan to home school, but they are only ages 4 and 5, so I have not formally filled out the paperwork to home...
linplus2
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Mar 29, 2007
10:44 am

Hi Kerry: I am keeping my children at home and plan to home school, but they are only ages 4 and 5, so I have not formally filled out the paperwork to home...
linplus2
Offline Send Email
Mar 29, 2007
10:44 am

Hi Kerry: I am keeping my children at home and plan to home school, but they are only ages 4 and 5, so I have not formally filled out the paperwork to home...
linplus2
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Mar 29, 2007
10:44 am

Hi Kerry: I am keeping my children at home and plan to home school, but they are only ages 4 and 5, so I have not formally filled out the paperwork to home...
linplus2
Offline Send Email
Mar 29, 2007
10:45 am

Hi Kerry: I am keeping my children at home and plan to home school, but they are only ages 4 and 5, so I have not formally filled out the paperwork to home...
linplus2
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Mar 29, 2007
10:45 am

Hi all, My son, Alex, attends a school for autism in Cleveland--the Monarch School, which is affiliated with Harvard, in Boston. We really love it, and it ...
Ivy Boyle
boyle_ivy
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Mar 29, 2007
10:45 am

Indiana has pretty loose regulations on homeschooling. You just need to fill out minimal paperwork. There's a worksheet for how you plan to cover various...
Jill Boughton
jillaprilb@...
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Mar 29, 2007
9:44 pm

Hi Kerry: I am keeping my children at home and plan to home school, but they are only ages 4 and 5, so I have not formally filled out the paperwork to home...
linplus2
Offline Send Email
Mar 29, 2007
10:46 am

Hi Kerry: I am keeping my children at home and plan to home school, but they are only ages 4 and 5, so I have not formally filled out the paperwork to home...
linplus2
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Mar 29, 2007
10:47 am

My son, Patrick, will be 9 on Sunday. He is completely non-verbal, in diapers, & cognitively about age 1. I have tried several autism therapies (diet,...
Terri & Howard Schlange
terri66801
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Mar 30, 2007
11:48 am

Hi Terri (and others!): Thank you for sharing about your son, Patrick. He sounds a lot like my Trevor at age 5, he is regressing further and his fine motor ...
linplus2
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Mar 30, 2007
2:19 pm

Hi, Trevor, who is "very mellow and loving and seems way less PWS than autistic", sounds quite a lot like my son Alex. Alex is almost 20 now. He is still...
Ivy Boyle
boyle_ivy
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Mar 30, 2007
8:06 pm

Lin, Patrick didn't give much eye contact until he started having caregivers 12 hours a day paid for by the State of Kansas when he was age 5. Because he's so...
Terri & Howard Schlange
terri66801
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Mar 30, 2007
8:03 pm

Terri: Thank you for the book suggestions and for the descriptions and explanations of what has been your experiences with Patrick. I have tried the benedryl...
linplus2
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Mar 31, 2007
7:10 am
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