A post from Jodi O'Sullivan
Dear Families and Friends,

In the most recent past months, PWSA has been honored by many friends
and families who have held fundraising efforts to support the
organization¡¦s work. This support is vital to PWSA to continue its
mission that states:

PWSA (USA) is an organization of families and professionals working
together to promote and fund research, provide education, and offer
support to enhance the quality of life of those impacted by Prader-
Willi syndrome.

You are integral to this organization and for each other, too. By
ensuring the viability of PWSA (USA), you are creating hope for all
of us¡Xallowing us to continue to improve the lives of our loved ones
who have PWS while working towards a cure and better treatments and
understanding of this complex syndrome. In every stage of life of
PWS, PWSA is and will be here for you¡Kfrom state chapters and support
groups to the international community (International Prader-Willi
Syndrome Organization or IPWSO). Those at PWSA (USA), volunteers
included, are working in every level in every way to keep progress
moving forward. Thanks to all of you and thanks to the following
individuals who coordinated the latest fundraising efforts that are
supporting PWSA:

„PJennifer and Brad Bolander and OH PWSA for Sophie¡¦s Walk on June 4th
in OH
„PPeter Kearney , Maurice Fox and the Steck family for the Annual
Charity Golf Outing in NY on June 10th
„PHeather and Stephen Burnham for their family Bella Bingo Day in ME
on July 1st
„PHope Mays for Clyde¡¦s Run in memory of Clyde Mays in GA on July 15th
„PMaria Silva for the Povertyneck Hillbillies concert & pig roast in
PA on July 16th
„PMike Kuna and Scott Kuna for participation in the Seattle to
Portland Bike-A-Thon in WA July 22nd weekend
„PPWSA of WI, Inc. for their 6th Annual Charity Golf Benefit in WI on
August 26th
„PJamie Bassel, Shawn Ellen and David and Bradley from Neighborhood
Sports Grill for the Neighborhood Sports Grill Charity Golf
Tournament in FL on August 27th
„PClint and Karla Hurdle, Darrin Kerbs and Kevin Mullen for Golf for
PWSA Annual Charity Golf Tournament in honor of Madison Hurdle in CO
on August 28th
„PPamela Claudio and the Chymbor family for Health Fair in honor of
Evan Chymbor in CT on September 9th
„PPatrick Meakim and Cal-Trip Electronics for the 3rd Annual Cal-Chips
Electronics Annual Charity Golf Tournament in PA on September 15th
„PBill Vucci and the Fun Bunch Committee for the Prader-Willi Open
Golf Classic with celebrity guest speaker, USA Olympics Gymnastics
Gold Medalist Kerri Strug, in honor of Maria Christine Vucci in MD on
September 21st
„PJessica Howard and Farrah Sinclair for their online Creative
Memories fundraiser the entire month of September

I invite you to chime in and offer congratulatory comments to any of
these individuals who worked hard to make these efforts happen or any
other person who has done something special for you or PWSA.

If you, too, would like to organize a fundraiser for PWSA (USA)
please contact me. It doesn¡¦t matter if you¡¦ve never done a
fundraiser before¡Kyou can do it! Many people did their first
successful fundraisers for PWSA (USA). It¡¦s also not too early to
start making plans for PWSA¡¦s PWS Awareness Week in May. You¡¦ll have
support from PWSA (USA) and also from those who¡¦ve planned a
fundraiser before who have volunteered to help guide others who need
it.

The possibilities you bring are truly exciting. Thank you!

Best,
Jodi O¡¦Sullivan
PWSA (USA) Director of Community Development
800.926.4797
comdev@...