Kerry,
I toilet-trained Alex using a book by Fox and Asrin. Can't remember
the title, but they wrote a book on toilet training people with
mental retardation. I bet you can still find it in the library. It
worked for me, and J.R. sounds like he can pick things up, with
repetition.
Ivy
- In pws-autism@yahoogroups.com, "Kerry Headley" <k.headley@...>
wrote:
>
> Hi everyone,
>
> My son J.R. is 7 years old, P-WS Maternal Disomy and has had the
secondary
> diagnosis of Austism since he was 2 years old. J.R. is completely
> non-verbal. He loves to sign (especially about animals, colors,
and
> numbers) and use his speech device when absolutely necessary.
He's very
> interested in Sesame Street videos/DVD's, numbers, colors, and the
alphabet.
> He has a number of "traditional" autistic behaviors like self
stimming, poor
> relationship skills, and not being able to maintain visual contact
as well
> as lots of traditional P-WS characteristics. J.R. is very easy-
going and
> happy and doesn't seem frustrated (yet) by his inability to
speak. He's
> pretty good at getting his point across with either signs,
pictures, or his
> speech device. If we still can't figure out what he's saying, he
ususally
> just drops it and moves on without incident.
>
> J.R. is still not 100% potty trained. He'll go any time I put him
on the
> potty but doesn't initiate telling me he has to go. I'd love to
hear
> strategies on how anyone has suceeded with potty training as
diapers are
> pretty expensive for such a big kid!
>
> J.R. loves to eat but has had recent episodes when he refuses to
eat. He
> gets stuck on an idea or video or song and can't get past it and
not even a
> meal can break him out of it. This definitely scared me at first
but after
> many trips to the doctor and one for stomach x-rays we just came
to the
> conclusion that there would be times when the autistic
characteristics win
> out temporarily. Does anyone else's child refuse food at any time?
>
> I'm so glad we have this group! I've read so many things that are
such
> similarities.
>
> Kerry Headley
> Mom to J.R. (7 1/2 PWS UPD)
>
>
>
> _____
>
> From: pws-autism@yahoogroups.com [mailto:pws-
autism@yahoogroups.com] On
> Behalf Of boyle_ivy
> Sent: Wednesday, September 06, 2006 3:24 PM
> To: pws-autism@yahoogroups.com
> Subject: [pws-autism] problems of the young adult
>
>
>
> Alex is 19, and we're beginning to deal with his future. I have
> several questions:
>
> 1. The doctor wants to start him on testosterone for his bones.
Alex
> functions like a 2 year old. Has anyone else with a child with
> autistic symptoms used testosterone? What has been your experience?
> 2. Does anyone else's child work, in a workshop or other program?
> How has that worked out?
>
> Lastly, I have a feeling we have lots of different age groups in
this
> group. Maybe we should all report our children's ages, so that we
can
> figure out what the different issues are at different times in our
> children's lives.
>
> Thanks,
> Ivy
>