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Hi everyone,
My son J.R. is 7 years old, P-WS Maternal Disomy and has had the secondary diagnosis of Austism since he was 2 years old. J.R. is completely non-verbal. He loves to sign (especially about animals, colors, and numbers) and use his speech device when absolutely necessary. He's very interested in Sesame Street videos/DVD's, numbers, colors, and the alphabet. He has a number of "traditional" autistic behaviors like self stimming, poor relationship skills, and not being able to maintain visual contact as well as lots of traditional P-WS characteristics. J.R. is very easy-going and happy and doesn't seem frustrated (yet) by his inability to speak. He's pretty good at getting his point across with either signs, pictures, or his speech device. If we still can't figure out what he's saying, he ususally just drops it and moves on without incident.
J.R. is still not 100% potty trained. He'll go any time I put him on the potty but doesn't initiate telling me he has to go. I'd love to hear strategies on how anyone has suceeded with potty training as diapers are pretty expensive for such a big kid!
J.R. loves to eat but has had recent episodes when he refuses to eat. He gets stuck on an idea or video or song and can't get past it and not even a meal can break him out of it. This definitely scared me at first but after many trips to the doctor and one for stomach x-rays we just came to the conclusion that there would be times when the autistic characteristics win out temporarily. Does anyone else's child refuse food at any time?
I'm so glad we have this group! I've read so many things that are such similarities.
Kerry Headley
Mom to J.R. (7 1/2 PWS UPD)
From: pws-autism@yahoogroups.com [mailto:pws-autism@yahoogroups.com] On Behalf Of boyle_ivy
Sent: Wednesday, September 06, 2006 3:24 PM
To: pws-autism@yahoogroups.com
Subject: [pws-autism] problems of the young adult
Alex is 19, and we're beginning to deal with his future. I have
several questions:
1. The doctor wants to start him on testosterone for his bones. Alex
functions like a 2 year old. Has anyone else with a child with
autistic symptoms used testosterone? What has been your experience?
2. Does anyone else's child work, in a workshop or other program?
How has that worked out?
Lastly, I have a feeling we have lots of different age groups in this
group. Maybe we should all report our children's ages, so that we can
figure out what the different issues are at different times in our
children's lives.
Thanks,
Ivy
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