Hello everyone,
Just wondering if anyone has experienced "tics' with thier children. Reagan (5 PWS/UPD) started to have uncontrollable shoulder shrugging over the weekend, I have vidoe taped it to send to Dr. Jennifer Miller. He has always been a very active child. He never sits down. He does la lot of jumping/lunging/bouncing when he speaks, and when he is excited. We have been working with a behaviorlist and she has suggested that we keep reminding him to speak "with a still body" this only helps for a short time. He has had this behavior since he was very small and able to walk. He also rubs his hands together alot, speaks very fast, etc. This morning was like watching a child that I have never met before..he is moving constantly, like he just had a ton of sugar.. which we are very careful about his diet. He is not on any new meds, same things..GH, mutivitimin, coromega, and L-carnitine. He has been on these for quite some time, so I don't think that it is from meds. I feel so bad for him, he already has so many issues with behavior, poor social skills, etc. In doing some research..I know bad idea to get on the internet for answers...could it be Tourette's? Actually it really sounds more like Asperger's to me. He fits the criteria to a T for Asperger's.
Would like to hear any advice/thoughts/stories from other moms.
Diane Seely