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Nothing more than what I was told was customary and ordinary because of PWS. He'd get diarrhea if he binged, so that's not something he would alert me to. We did have to buy a new toilet that was guaranteed to flush anything because of near daily plunging. No one would go in the bathroom after him. But he's a man, and he has PWS, so ... we just never thought about it ... or at least tried not to. He has a doc appt tomorrow, I can let you know if they find anything. Just give me a reminder off-list. Sandy
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To: pws-autism@yahoogroups.com
From: jillaprilb@...
Date: Mon, 25 Feb 2008 18:30:08 -0800
Subject: RE: [pws-autism] SCD - Specific Carbohydrate Diet
Was David having diarrhea and other intestinal problems before this diet?
Sandy <sandsinteriors@hotmail.com> wrote:We haven't really modified the diet for David as far as further restrictions or exchanges. He eats honey, butter, fruit juice--as per SCD, and he did not have those before. We haven't measured out quantities, he eats "normal" portions of everything, takes seconds at the dinner table if he wants. I have incorporated additional probiotics for Dave along with the yogurt, he was taking Omega3s, until I realized I'd bought the wrong one (flax seed instead of CLO), but plan to replace that, and I'm also considering enzymes to improve stomach function (PWS research, not SCD science). BUT ... old habits die hard. After so many years of portion control, calorie counting, etc., it's hard for me to give up on some of those things, which is why I have a constant supply of chicken or beef broth on hand which I encourage Dave to eat with each meal and also to eat that for between meal snacks. (I'm sure he'd prefer to eat the entire loaf of banana nut bread, but so would I.) He's still doing well, but he still has that PWS inability to resist temptation of other foods. We've had a couple instances where he's had access to "illegals", and taken it. Unfortunately, the foods caused pain as well as elongated bathroom visits, but I don't know that the PWS will ever allow him to "just say no." Sandy
To: pws-autism@yahoogroups.com
From: jillaprilb@sbcglobal.net
Date: Mon, 25 Feb 2008 12:28:20 -0800
Subject: Re: [pws-autism] SCD - Specific Carbohydrate Diet
Did you modify the diet for PWS? For example, are you using honey or not? Do you measure quantities of food for him?.
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