This group has been created to provide support and information for people suffering from pulmonary fibrosis primarily in the uk but from any area. Carers and family members, and people who have already lost their loved ones to the condition are welcome too. We cannot offer medical advice. No member on here is a qualified ild practitioner. All we can do is share our experiences with each other.

We also have several facebook groups and pages: -

PulmonaryFibrosisPatientsUK
Pulmonary Fibrosis Carers & Bereaved group
Pulmonary Fibrosis Trust Fund

Pulmonary Fibrosis UK
is run by the Farley family and is the biggest uk
group and has a mixture of patients and carers.

There are also several global groups and pages
for awareness etc. Just search pulmonary fibrosis
in the facebook search box.

A charity (reg no; 1149901) connected to this group has just been set up and is called 'The Pulmonary Fibrosis Trust'. T: 0333 2020991. Any donations should be sent to Malcolm Weallans, honorary teasurer, The Pulmonary Fibrosis Trust, 11 Redwood, Burnham, SL1 8JN. email at Malcolm.Weallans@btopenworld.com. Funds can be deposited direct to the bank at NatWest account, burnham branch, sort-code 60-04-53, and the account number is 13603604.

The Trust also has a website:
www.pulmonaryfibrosistrust.org http://www.pulmonaryfibrosistrust.org

and a donation link has been set up at:
https://mydonate.bt.com/charities/pulmonaryfibrosistrust

There is also a organisation called Breathing Matters who research reasons
for Interstitial Lung Diseases of which pf is one.

http://www.breathingmatters.co.uk/

In our files section you will find profiles of members of the group. It would be helpful if you could complete a profile for yourself. Any fund-raising ideas would also be welcome.


may stone
zena easman
maureen valente
- moderators.

WE ALSO HAVE A TINY URL WHICH IS: TINYURL.COM/PFUK123