She started Diamox about 2 weeks ago without any results so far. She does not drive at all right now. Her vision is affected already. We are seeing a ...
30660
Ralpha
rstaeger
Sep 4, 2011 4:00 am
Staying hydrated is key to managing my ability to handle the "tingles" when taking Diamox. I always have a water bottle with me--room temp is easier to...
30661
KAREN MCNEIL
kkmcneil...
Sep 4, 2011 12:30 pm
I am passing this on to my daughter. She has extended periods of vomiting with headaches. Thanks for the reply. ________________________________ From:...
30662
Sarah N
noah23456@...
Sep 4, 2011 2:44 pm
I just gotta say that although the meds we take can cause the queasy feeling so can the pain. I was hit so hard yesterday while driving doing my errands I...
30663
Lauricia Calderon
lauricia.cal...
Sep 4, 2011 11:54 pm
Hi Sarah What is a RX Pota? I am still newly diagnosed, and learning and changing and it really freaks me out how things have changed so fast. I dont have so...
30664
Ralpha
rstaeger
Sep 5, 2011 4:25 am
Rx = prescription Potas = potassium Usually prescribed to regulate muscle function in the body--potassium is depleted through the use of diuretics like Lasix...
30665
Lauricia Calderon
lauricia.cal...
Sep 5, 2011 4:40 am
OK.. thanks.. I do have that.. and they just upped the dose... as well as my blood pressure med. I just cant get a handle on all these meds. thanks for the...
30666
hope_hugel@...
hope_hugel...
Sep 5, 2011 6:04 pm
My name is Hope and I live in the DFW area with my husband and 3 pre/teenage children (12, 13, and 14). I have PTC and recently (within the last week) had a VP...
30667
Karla
lovedopey89
Sep 5, 2011 6:52 pm
Welcome Hope, I'm going on my 4th yr come Nov with my Vp shunt. What you are dealing with might be a side effect of the diamox and the swelling from the...
30668
Hope Hugel
hope_hugel...
Sep 5, 2011 7:01 pm
I ordered one of the bracelets off the site and paid for the 1 year subscription as one way of donating. We have a place at work where we can donate to...
30669
Karla
lovedopey89
Sep 5, 2011 7:46 pm
That is awesome! I hope you can succeed in your major venture. Hopefully the foundation can give you some help. If you go on facebook, the IHBrainPain team...
30670
Sarah N
noah23456@...
Sep 6, 2011 9:53 pm
sorry bad habit, working in medical field I tend to forget not to use abbreviations. RX = prescription K= Potassium good luck and hang in there, as all will...
30671
William
deswill60
Sep 7, 2011 5:09 pm
I am in the South Georgia area and am having a really hard time finding a neuro that is knowledgable about PTC. Does anyone have any suggestions? I can do...
30672
KAREN MCNEIL
kkmcneil...
Sep 7, 2011 5:41 pm
We are also looking for a good neuro surgeon in the Memphis area if anyone has a suggestion. Karen ________________________________ From: William...
30673
ugacarey@...
ugacarey
Sep 7, 2011 10:10 pm
I use to live in Camden County. I saw UF neurologists and they are familiar with PTC and its treatment. Other option is Mayo Clinic in Jax. Sent from my...
30674
Sarah N
noah23456@...
Sep 8, 2011 12:28 am
I have to admit that it is my neuro opto that knows more about ptc than my neuro. So I see both and make sure notes are shared between the two so maybe start...
30675
Ralpha Staeger
rstaeger
Sep 8, 2011 1:23 am
A neuro-ophthalmologist has training in both fields, so under stands the disorder from both points of view. The IH Research Foundation can help you locate one...
30676
bjoycehamilton@...
bjham2001
Sep 8, 2011 12:22 pm
Try Dr. Nancy Newman at Emory. She is a Neuro-Ophthalmologist and she is good. Have your primary call and try to get an appointment. You might get in...
30677
Hope Hugel
hope_hugel...
Sep 10, 2011 10:43 am
I had a Vp stunt placed on the 30th. I wake up with daily headaches and if I have to cough it hurts my brain (or seems like it). I still have twinkle light...
30678
Stacy Garcia
stacygarcia1977
Sep 10, 2011 7:39 pm
I have LP shunt. Feel that way a lot when its time to get readjusted...even after adjustment it takes a few days to feel OK...prayers for u! On Sep 10, 2011...
30680
Janet Kniep
jkkniep...
Sep 15, 2011 5:16 am
Hi Hope, I also live in the DFW area. My 20 year old daughter has IH. We've had a lot of trouble finding doctors that understand IH and that know how to...
30682
Janet Kniep
jkkniep...
Sep 17, 2011 12:09 am
Karen, The not eating much and vomiting are signs of too much acidity in her blood. Be sure she gets bloodwork done monthly to catch metabolic acidosis. My...
30697
jwtooblsd blessed
jwtooblsd
Jan 20, 2012 1:44 am
Happy New Year!! How is everyone? Hopefully pain and stress free. I haven't seen any posts lately, so I thought I would just say hello. Be Blessed, Janine West...
30698
TERESA MEALER
tamealer
Jan 20, 2012 1:30 pm
Hello to you too! I haven't been on here in a long while. My ptc has been under control, I have just been having troubles with migraines. Have a great weekend....
30699
Heather Kruger
hekruger
Jan 20, 2012 3:13 pm
We have had a crazy time here with our 13 year old daughter. She had her lp shunt revised 3-30-11, 9-30-11 and 10-25-11. Then she had decompression surgery for...
30700
Malissa Foster
mipegg
Feb 3, 2012 2:14 am
<p>im disappointed that I let my debt build up so much this couldnt have come at a better time my anxiety levels were through the roof!<br><a...
30708
Kelkel
redpinky...
Mar 8, 2012 9:06 am
I would like to hear from those of you who have had gastric bypass surgery and what were your outcomes as pretaining to your disorder. Thanks so much....
30709
Sarah N
noah23456@...
Mar 11, 2012 1:51 am
Hi my name is Sarah and I had gastric bypass in 2004 and lost almost 200lbs. It has been life changing almost all for the good. The one down is that I did not...
30710
Andrea McDonald
simplyandrea2
Mar 11, 2012 1:58 am
My NS had told me that I have to have the gastric, so basically, after he has done 28 surgeries on me since 2006 he is telling me that he can't do anything...
30711
Cathy Campos
cubanchik81
Mar 11, 2012 1:28 pm
I had gastric banding surgery August 2011. While its still very early in my weight loss, I have seen reduction in the number and severity of my migraines. My...
