I am also a McHenry lost sheep. After being in pain and eyes swollen and red inside, (there is almost no white left showing) I went to the emergency room....
Martha, Sorry about the er visit. I know its always the last straw to have to go there. I myself am in a kind of limbo. Let me know please how your visits...
If you are in need of a good Neurologist, try Dr Wanda Castro she is part of UTSW she treats my wife she has no problems with prescribing meds and seems to be...
Hi, I have posted this once, but no one read it, or ignored it. I see a pain specialist who understands PTC. He is excellent and you need to consider him in...
As I live in California and would not be able to see your doctor, could you share with us what he perscribes to you. I think my doctors are great but they...
Thanks for the info Susan. Most of these doctors everyone posts do not take Medicaid which is my biggest problem. I won't go see a doctor that no one has...
Hello Susan, I read your info. and I'm trying to get DR DENO BARROGA, MD, MPH to take me, I don't know about everyone else, but insurance coverage is ...
I am also a Dr. McHenry patient and I did see Dr. Chai. His office told me that they would send out letters when they find out something. Has anyone gotten a...
Hi Martha, Unfortunately, the information in your oh-so-helpful paperwork is nothing more than what has been floating around regarding IIH (which is all too...
Glen
chdblwinnr@...
Feb 10, 2010 2:52 am
28699
Hello, I hope everyone is well. Its been a very rough couple of months for me. I haven't posted in a while but I still read the posts. I lost my job after 15...
ptc-owner@yahoogroups...
Feb 12, 2010 5:44 pm
28700
Hi group, I am wondering, has anyone ever had lap-band surgery to help with the PTC? My husband and I have prayed and prayed over a solution to the headache....
HI Kiki, I have had that happen to me in the past. I ended up getting a lumbar puncture and had some fluid drained and it stopped. I can always tell when my...
I would SERIOUSLY discourage you from LapBand surgery. If you need to lose the weight and are unable to do it on your own, then PLEASE do some serious research...
First dx 8/31/97, I am 46 and live in New England. Yup, thats about 13 years. Three different VP shunts. Last one changed out 5/09. Gained and lost and...
Hi Kiki, The usual culprit that causes double vision with IIH is Abducens Nerve (cranial nerve VI) palsy. The high intracranial pressure along the long course...
Glen
chdblwinnr@...
Feb 12, 2010 10:52 pm
28705
Hi Kiki and Big "Hi" to group! I am brand new to this group and very happy to be able to get to be here with those of you who understand "Life with IH/PTC" and...
KiKi, My PTC is in remission (read I am healed), but I had jumpy eyes too. Night-time driving was bad for me; it seemed the headlights were blaring right into...
It's good to hear a success story. My 19 year old daughter was diagnosed July 2009, but has had IH for many years. She is having problems with the medications...
Janet , I have had my shunt in 15 yrs now and never had to have it revised except 1 time which was 9 days after it was put in doctor didn't tie it down like he...
I am an older case of PTC. I was diagnosed in the early 90's. I had vision issues, head ached and balance issues........................ but I must say...
I don't know what to do. I have a VP shunt in and i have gain a lot of weight in a short time my doctor neurologist wants me to have this surgery do to think...
So far all 3 of my VP shunt have worked great for 5 years each. The medication cocktails only worked for about 9 weeks on the first episode and then the...
Hi, I've been reading the messages over the last several days, and have to say that I am surprised at some of the response to the weightloss surgery. I am 3.5...
Hello, all. I'm new to the group and thought I'd take a few minutes to introduce myself, as requested. I am 29 years old and live in Indiana. In the early...
First of all, welcome to the group. I am sorry about your miscarriage and all that you went through. I also had an optic nerve sheath in Oct 06 b/c of high...
Hi Stephanie. Â Thank you for sharing your story with us. I am truly sorry you had to go through all of that! IIH is a weird thing. Its is crazy how it...
I am almost 43 years old and live in CT. On 2/2/10, I was recently diagnosed with PTC , so this is very new and scary diagnosis. I have been having headaches...
I am still getting used to everything, recognizing that some days, my vision is better than others, trying to figure out what triggers it for me, etc. But I...
Hi, Bruni. In regard to your "hallucinations," after my eye surgeries, I had a few weeks in which my brain had a weird time trying to make sense of what it was...
Wow that's kind of how I feel. The lighting in the store is too bright and I also have to hold on to someone when I go shopping or hold onto the shopping cart...
