Hi Denia: Â Â You are not alone! For many years, even during my childhood and adolescent years, my mother told me I was hot to touch! My husband says the same...
Thanks Freeda - you described my circumstances to a tee! I don't remember feeling "hot" as a child - but was never able to get pregnant - did fertility...
Hi Denia. Don't be embarrassed about the rashes. It happens to a lot of women. It is probably a fungal/yeast infection that happens naturally in moist,...
Its funny (not the haha kind) that you should mention the rashes you get on your body in those 2 places. I am currently experience a very painful rash under my...
Thanks Bridget - I really figured it was a type of yeast infection - but knowing by hearing it from someone with your experience makes me feel better - I will...
A doctor recently started me on bioidentical hormone therapy; I am premenopausal. Since starting the hormone treatment, my intracranial pressure has increased...
Julie,     Are you on a high dose of hormones? I am on hormone replacement, but a very low dose. I was on it b4 I was diagnosed with PTC. My pressures...
im not sure .. but I can tell you when it is that time of the month for me my pressure definitely goes up... I went almost two years with a cycle due to being...
Hello, Â Â Â Â I was wondering if anyone knew/heard of PTC being hereditary? My 17yro has female issues and is presently on lupron shots, she has been having...
Actually, have a ophthalmologist see if there is swelling on the optic nerve- a MRI didn't catch my daughters ptc, an exam did! From: ptc@yahoogroups.com...
I know the IHRF says that IH/PTC isn't hereditary, but there are some KNOWN families with this syndrome.. mine included.
My mother had IH, my half-brother had...
Thanks for shedding light on my worries. I am going to give the meds a week to work then get a referral. We have excellent insurance, we don't pay anything for...
A fat person’s disease? I doubt you were obese at age 6 or that your daughter was obese at 7. I’m so sick and tired of people blaming obesity on...
I hate that they put every one who as this as a fat persons disease. not all people who have it are over obese some are mildly over wight. I'm not even a...
Shannan, When I was very young I was average sized. It was AFTER I started having issues that I started gaining weight. When I was in my teens I weighed 118...
Pseudotumor is not a fat person disease. I have been skinny my entire life. I was very thin when I was diagnosed 2 years ago. I am 5'4" and I weighed 125. I am...
Frustrating, if they do not understand it then then they should not make those comments. they just want to put us all in to a nice one category but we do not...
Y ou know what makes it even worse is that doctors say that if you lose weight, your symptoms will be better or go away. In 06, when I was in the hospital. One...
THANK YOU GOD for all OF YOU! You each have said exactly what I have been saying for years. Seriously, if this was a fat person's disease then why don't all...
I am 5'2 120 lbs. The "fattest" I ever was, was the day I gave birth to my beautiful daughter and by the way I had no symptoms while I was pregnant. It is...
My daughter, the one with IH, was a competitive gymnast when her headaches started. It wasn’t until years of dealing with the IH that she began to gain...
I think that too I had my son and was having the first signs of trouble and them i started having trouble losing my baby wight and what efforts i made i just...
I agree with you too. I didnt start having problems until I was pregnant. I gained weight and lost some and had the symptoms. They got alot worse after my 2nd...
I with yea I live in Northern Maine and it is so hard to get any one to connect any thing even my nero who comes up from Mass. dose not connect anything and my...
Yes! I go to a neuro-opthamolgist. He is one of the best in the southeast. Im in atlanta, GA. I wish I had the money as well. This forum has been slow over the...
My name is Cortney and my sister has PTC. I do not know as much as I should about this disorder but we are learning together. Her name is Dawhn and she also...
Dear Cortney, It is nice of you to help your sister. Your sister has a long road ahead of her! I have had pseudotumor since Nov '07. They do not know what...
Hi courtney. I live in Cherokee co. Ga. I see Dr. Spector, he is a neuro-opthamologist & one of the best in the southeast. His office is across from northside...
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