Hi, I'm Shannan from Arizona and my daughter was diagnosed with PTC in Dec 2005. She spent 7 years with increasing intracranial pressure before a good ...
My God Shannon, I do feel for your daughter, molestation, rape, other things also happened to me. (Not by my dad). One nuero said that all that was wrong with...
My name is April. I am 24 years old. I was diagnosed with PTC in 2002, during the final months of my senior year of high school. It started with headaches,...
I saw that there was a question posted on yahoo answers about pregnancy and PTC. I was wondering if anyone knew of a medical website I could visit to research...
Praise the Lord! He hasn't answered our prayers with a "yes" yet. From: ptc@yahoogroups.com [mailto:ptc@yahoogroups.com] On Behalf Of identity_dreamer Sent:...
There have been many pregnancy and Diamox questions and answers posted on this board...but the bottom line, no researchers have ever gathered the facts. ...
Hi Shannan: Â I am so sorry that your daughter had to go through all of these problems...I rarely check my email on my yahoo account because I use my gmail...
My name is Kettra. I was first diagnosed with PTC when I was 14. I went several months of having difficulty with headaches, my eye began to protrude and the...
Well Kettra, I am sorry to hear about all you have been through. I had a neurosurgeon that didn't want to do a vp shunt because he said I was too old (27) and...
Yep, you hit it right on the head! The optometrist she went to also went into panic mode as well as the opthomologist they sent her to. Everyone else just...
Recovery after the vp was 2 days for my daughter and 2 weeks for a lp shunt. AND the vp lasted longer! From: ptc@yahoogroups.com [mailto:ptc@yahoogroups.com]...
I took Diamox from week 12 on. My daughter is 14 months old now and there have been no complications for her. The pregnancy was great as was the natural...
I am in Kyle which is outside of Austin. If you could tell me your surgeons information that would be great. My family is telling me that we should get a...
Kyle, my daughter is 15, was diagnosed with PTC when she was 14, and had a lapband procedure done when she was 12. She lost only a little weight with the...
Well Kettra, the physician I use is at the UT Southwestern group in Dallas. My dr's name is Chris Madden. Let me know if you would like his number. ... From:...
Hi Kettra, I'm in Temple - just up the road from you on IH 35 - I considered the bariatric surgery, but at the time my neurologist didn't think it was a good...
I am not overweight and I am eat up with pseudotumor. I am 29 years old. 5 feet 4 inches tall and weigh 137. When I was diagnosed 2 years ago I was 125 Lbs. I...
I aggff digh jou 100% because I have had female issues since I was 16- from a cyst to endometriosis. I remember reading somewhere about hormonal problems. I...
Hello everyone! My name is Janice and my ten yr old daughter Maia was diagnosed with PTC on Feb 25 of this year at Sick kids hospital in toronto. We live in ...
Hi Janice, I am sorry about your daughter. I can definately empathize as I have often been told that my eyes are okay, so the PTC is better. It is very...
My daughter also felt sick to her stomach most of the time- basically from dealing with the pain. When the shunt is working, she feels great and is able to...
My daughter was cautioned and put on a special diet as a precaution she is five ft two and 122 pounds is not overweight... She is having a bad case of the...
... arms...she has also had horrible back pain then it went away but came again. Thanks for the reassurance her sweating was so bad before diamox she couldnt...
Hello Janice and Maia - My neurologist prescribes phenergan for me to use with my really bad headaches - not only does it work wonders for the nausea, but he...
Hi Denia Thanks so much for the support and advice. It is really difficult esp in canada and we are in a small town...but I will never give up on my ...
... From: Sequins <sequins@...> Subject: Re: [ptc] Re: introduction To: ptc@yahoogroups.com Date: Wednesday, March 25, 2009, 6:02 PM Â Today I found out...
My daughter has been told by her neuropthalmologist to drink tons and tons of water. However, I've noticed that when she is given intravenous fluids, she...
Hello there i dont mean to scare anyone with what I said about the drinking...I am as confused as anyone else about this. I wanted to let people know that I...
Janice, I'm so sorry to hear the news about lupus, but at least you have a better understanding of your daughter's illness.? I remember specifically asking my...
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