Hi. congrats! I have a one year old and was having symptoms until I was pregnant. I had absolutely no complications during the pregnancy and am still...
Hi Ptc, I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can see it. First, you need to...
hey Jen, I have a facebook acct, but am not that great on the pc, so I couldn't figure out how to add you. Mine is listed as teresa carter-mealer. If you can...
Hi group, I haven't posted in a while but I wanted to ask if anyone has ever developed a syrinx in their spinal cord? I just found out yesterday that I have...
Crystal, my name is Janine and too have a syrinx from having a lp shunt. I also developed chiari 1 malformation. I had a vp shunt placed in Dec 2006 until...
Janine, I already had the decompression surgery - it actually was one of the easiest surgeries I have had. So I am worried that since I already have had that...
Crystal, Â Â I guess I was told something different then, I was told that my LP shunt is what caused my chiari and in return a syrinx. From my understanding...
I guess that is why I am so confused. My doctor alluded to the fact that my chiara probably caused the syrinx. But since I had decompression surgery in 2001,...
Hi Ptc@yahoogroups.com, I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can see it. First,...
For all of those on face book can you please send us a link to your profile so we can add you easier Example mine is http://www.facebook.com/s.php?init=q...
Crystal, Â Â Â Â I am so sorry that you are going through right now. There was a time that I felt like that. My kids were 2, 5 and 6 when I was diagnosed, so...
Hi, I'm Shannan from Arizona and my daughter was diagnosed with PTC in Dec 2005. She spent 7 years with increasing intracranial pressure before a good ...
My God Shannon, I do feel for your daughter, molestation, rape, other things also happened to me. (Not by my dad). One nuero said that all that was wrong with...
My name is April. I am 24 years old. I was diagnosed with PTC in 2002, during the final months of my senior year of high school. It started with headaches,...
I saw that there was a question posted on yahoo answers about pregnancy and PTC. I was wondering if anyone knew of a medical website I could visit to research...
Praise the Lord! He hasn't answered our prayers with a "yes" yet. From: ptc@yahoogroups.com [mailto:ptc@yahoogroups.com] On Behalf Of identity_dreamer Sent:...
There have been many pregnancy and Diamox questions and answers posted on this board...but the bottom line, no researchers have ever gathered the facts. ...
Hi Shannan: Â I am so sorry that your daughter had to go through all of these problems...I rarely check my email on my yahoo account because I use my gmail...
My name is Kettra. I was first diagnosed with PTC when I was 14. I went several months of having difficulty with headaches, my eye began to protrude and the...
Well Kettra, I am sorry to hear about all you have been through. I had a neurosurgeon that didn't want to do a vp shunt because he said I was too old (27) and...
Yep, you hit it right on the head! The optometrist she went to also went into panic mode as well as the opthomologist they sent her to. Everyone else just...
Recovery after the vp was 2 days for my daughter and 2 weeks for a lp shunt. AND the vp lasted longer! From: ptc@yahoogroups.com [mailto:ptc@yahoogroups.com]...
I took Diamox from week 12 on. My daughter is 14 months old now and there have been no complications for her. The pregnancy was great as was the natural...
I am in Kyle which is outside of Austin. If you could tell me your surgeons information that would be great. My family is telling me that we should get a...
Kyle, my daughter is 15, was diagnosed with PTC when she was 14, and had a lapband procedure done when she was 12. She lost only a little weight with the...
Well Kettra, the physician I use is at the UT Southwestern group in Dallas. My dr's name is Chris Madden. Let me know if you would like his number. ... From:...
Hi Kettra, I'm in Temple - just up the road from you on IH 35 - I considered the bariatric surgery, but at the time my neurologist didn't think it was a good...
I am not overweight and I am eat up with pseudotumor. I am 29 years old. 5 feet 4 inches tall and weigh 137. When I was diagnosed 2 years ago I was 125 Lbs. I...
I aggff digh jou 100% because I have had female issues since I was 16- from a cyst to endometriosis. I remember reading somewhere about hormonal problems. I...
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