My daughter had a very bad lumbar puncture on Monday that lasted two hours, even though it was done under fluoroscopy (sp?). She said that during the...
I had the same thing and it was nerve damage. I know that sounds horrible but it did heal. It just hurt pretty damn bad so I totally sympathize with what she...
Sheryl, I had several experiences like this. Sounds like nerves were hit or punctured. Generally speaking this usually heals. It does take some time, and using...
Ocean, She previously had a great radiologist perform the procedure almost painlessly, but at another Kaiser facility, so we are insisting that he is the...
Hi Sheryl: Â I pray that your daughter is feeling better...I was diagnosed in 2005, with PTC... Â After about 8 to 10 Lumbar Punctures, I was told that my...
Freeda, your story reminded me about my boys who have PTC. The oldest (that's had the 18 surgeries, and tons of LP's) has a "weakness" in his lower spine,...
In November, '06, when I was first diagnosed, I in my hospital room and a dr came in to attach a drain bag to my spine to hopefully keep from having the vp...
Good Sunday Afternoon,     I was wondering if anyone with PTC ever had a seizure? I had my second one yesterday while my hubby was driving. My 1st one...
I'm sorry you had the seizures. I've been having seizures for months now. They started out pretty rare (and I didn't know they were seizures at the time) last...
I have what they call stress seizers I was told that when my pressure was up my brain can short circuit. One trigger I have noticed is strobe lights I have...
In September my oldest son had a grand mal seizure. We had just come back from the store- and he was standing on the grass and just took a few steps back and...
Hey everyone. I was diagnosed about 8 or more years ago. I am married and have no kids. Every doctor I have been to has told me to lose weight, that the...
Appeal the denial and then you will more than likely have to reapply but it takes a couple of rejections to get approved. ________________________________ ...
Disability lawyers don't charge upfront fees. They collect a percentage and, sometimes, take fees from the first check you get which is comprised of the...
chdblwinnr@...
Jan 5, 2009 6:21 pm
28443
Hi. I was diagnosed about 5 years ago. Although I had disability insurance, they required me to file for SS after 6 months. Almost everyone who applies to...
My daughter has had seizures every since she was diagnosed with PTC.... and they are some pretty strong seizures.... Not to scare you .. but on Christmas night...
It's interesting that your daughter also has paralysis. When I have my seizures (especially when my pressure is very high) I have paralysis, too. Frequently I...
Sue,     I hope that your daughter makes a full recovery. I truly believe my seizure was from taking too much over the counter cold medicine. I am...
How is ICP monitoring done if you don't already have a shunt? Is there some device they can use that is external to the body, or does this involve an ...
Sheryl they put in an icp monitor in the OR under general anesthesia- but it's a quick procedure (and my boys ALWAYS get relief from just opening that space)....
Sheryl, There are three ways to monitor ICP and three accepted generalized ways to do this. There is the intraventricular ICP monitor that is placed into a...
Hi Sorry to just be chiming in on this topic - however, I also get severe lower back pain - in the exact areas of the LP's and then spreading outward from...
Hi, I've just found out i'm pregnant i'm still very early just 7 weeks...but i'm concerned about how this will affect my symptoms..i have intracranial...
My advice is to make an appointment with your neuro asap, so they can follow you closely, and they can work with your obstetrician as well. If you have to...
Hi. congrats! I have a one year old and was having symptoms until I was pregnant. I had absolutely no complications during the pregnancy and am still...
Hi Ptc, I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can see it. First, you need to...
hey Jen, I have a facebook acct, but am not that great on the pc, so I couldn't figure out how to add you. Mine is listed as teresa carter-mealer. If you can...
Hi group, I haven't posted in a while but I wanted to ask if anyone has ever developed a syrinx in their spinal cord? I just found out yesterday that I have...
Crystal, my name is Janine and too have a syrinx from having a lp shunt. I also developed chiari 1 malformation. I had a vp shunt placed in Dec 2006 until...
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