Hi Martha: Â I was diagnosed with Fibromyalgia in May 2008. I also was diagnosed with Pseudotumor Cerebri in October 2005, so I often doubt that I really have...
Hello.... interesting... I too have Pseudo Tumor and was diagnosed with Fibro this year as well...along with those two bombshells I was also diagnosed with...
I wanted to know if anyone knows of a pediatric neuro opthalmologist . My son was at his opthalmologist( we took him for a second opinion) and he is talking...
Yes, in St. Louis, MO at Cardinal Glennon's Children's Hospital. They have a whole team of pediatric nuero ops and pediatric neuro surgeons. I had to have one...
Hi Michele,
From your msg. Im assuming that u live in Florida? If so, I live in Orlando and my 7yr old daughter has ptc. Ive just switched her to a neuro-op...
I am looking for info if anybody can tell me if excessive weight as become a issue. My child is 15 and gains anywhere from 10-35 lbs a year since she was...
my son is almost 10 and he is under weight im not sure if weight is an issue . when you read about this disease it always mentions overweight but my son doesnt...
Hi I just got diagnosed with PTC and I am at a total loss of what to do. I have Polycyctic Ovarian Syndrome, depression and anxiety also, so I have been...
Hi All! I am a new member to this board, and relatively new to IIH/PTC, just diagnosed 12/07. My symptoms started around Dec. 1st with a daily headache which ...
Hi Princeofcatasws! Wow, sounds like you got alot going on. I was diagnosed with PTC, I believe in Aug. 08. I was put on diamox and started losing weight. Im...
Hi, Thanks for responding. It's nice to know I'm not alone. I am however 5'9'' and weigh 140 so for me it has nothing to do with weight. I have taught dance...
I don't know who that is. Weird. How did that persons story connect you with me?? I was diagnosed 2 1/2 years ago not recently. I just recently came onto this...
Wow, That was all within a year! It took me 2 1/2 years to get my vp shunt. I love it. what a blessing. I'm soo glad it's programmable. I wonder why they use...
I have had ptc for 2 1/2 years and am depressed, confused and feel like I'm losing my mind. I really hope to meet others out there who maybe have some of the...
I have no idea where you think you get off telling people - anyone! - to ignore other people's stories. IH is an *individual* disorder. NO ONE's story...
What have I missed regarding the email on the below. I am trying to follow what has been going on and myself still rrunning into walls. ... From: Ocean...
Hi..my name is Mark and I was diagnosed about 5 years ago with PTC. It started as a routine eye exam at a Walmart - and the opthalmalogist told me he couldn't...
Hi, As others have already told you, IH is a VERY individual disease. And a very touchy topic when we talk about treatments. Please read all of the stories...
I get the same thing with walking into stores! I thought it had something to do with my panic disorder but to hear that someone else suffers from it from PTC...
I have a lot of memory issues on my worse days. I've learned to just carry a notebook with me everywhere(used to be a tape recorder, but this is easier). ...
Hi! *wave* I have very serious IH (Intracranial Hypertension.. PTC is an "old" term for IH) and I did a LOT of research on weightloss methods,...
Jennifer I have short term memory loss with mine and the doctors told me I would always have this. And told my family I wouldn't be able to handle stress of...
Is your family really stressful like mine?? I told mine the exact same thing. Seems to help a little. My vp shunt took away most of the vision problems and...
I thought that all of my symptoms were horrible and they are but then found out a couple of months ago that I have thyroid cancer as well as ptc so that might...
Hi, I'm wondering why some have their heads shaved and others don't lose hardly any hair at all for the surgery. I had my vp shunt put in 2 mos ago and they...
I know when I had my LP shunt, I was always forgetful and confused. I also could not learn any new material. I had it removed for other reasons, but now I...
Hmmm that's odd Betsy because when I got my vp shunt 2yrs ago on the 13th. They told me that they would have to shave 1/2 my head. What kind of style could I...
One thing I want to warn you about. I was told that I was too fat and assured by /several/ doctors that weight loss would cure my PTC. I went on message...
Nobody can tell me why mine is only minimally symptomatic now. I was right around 300 lbs when I was diagnosed, lost about 80 lbs (symptoms did get better),...
Hi all, There is a very simple reason that weight loss doesn't eliminate IH in all cases. There are many different causes of IH. It is that simple. Some people...
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