I have had PTC for over 2 years now and I feel defeated. I had bariatric surgery and lost well over 115 pounds and while my papilladema went down, it won't...
I did the lose weight thing and nothing happened to my ptc. The meds didnt help that much either. And pain meds only made me a zombie and didnt stop the pain...
Sabrina, I am sorry for all your frustration with this PTC crap. I understand how you feel to certian extent. I am not on pain meds but I was given them before...
in your case you have held off as long as you can. i know i am waiting out to see if loosening a 75 pounds helps mine because thats what they told me they want...
I'm so sorry you are going through this. I understand where you are, but don't let anyone push you into something you don't want. If it's just because you're...
Sabrina, I am so very sorry your going thru all this pain. I have had this disease for almost 7 years now. I never had the bariatric surgery, but I lost 90...
Sabrina, First of all, NEVER apologize for ranting here, we all have to do some times, just not everyone does it here. But we do understand. I haven't lost the...
... was an LP shunt because i refused the Vp shunt . This device has worked wonders for my life i feel normal and rarely get any pain associated with this...
You know i was sitting here thinking about something. I've read many emails about ppl saying that they have relatives that are bigger then them and they dont...
You're right, Gina. My brother who is 6'3" and 180 pounds dripping wet also has IH. I've had IH since I was about 7 and my daughter who just turned 8 was...
I agree Gina. I weighed 240 when I got diagnosed. But I have had the disease for 20 years by the doctors reckoning and my weight has been up and down. Mostly...
Hi guys, I agree with you Gina, it is pretty crazy that not every overweight person has PTC, if that is the one definite factor that doctors are saying causes...
Hi Tina: Â I was just wondering if you and many others have problems with balance and coordination at unpredictable times, even when the cerebral spinal fluid...
Freeda, After reading your mail, it sounds to me like maybe you do have fibromyalgia. I have that also. Was diagnosed 2 years ago. All of the symptoms you...
Thanks Gina! ... From: Gina <enformer@...> Subject: Re: [ptc] I was sittin here wonderin To: ptc@yahoogroups.com Date: Friday, October 17, 2008, 4:28...
Hey Freeda, ?You know what, I do have problems with my balance and coordination.? Sometimes I will be standing having a conversation and my knees will give...
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I feel like my mother put me together with shoe string some days. i have my good and my bad some people just don't get it some days they think i make it up it...
Hi Tina: Â Â I have not had fainting spells in a long time but I think that it is linked to PTC too...I sometimes feel faint and my showers cannot be too hot...
Freeda, Thank you! I needed a new "frame" today...my IH symptoms are stable but I have regular tinnitus (as opposed to the pulsatile tinnitus I have with IH)...
Hi everyone, Its been awhile since I wrote anything. I have been dealing with issues since beginning of September and its finally dragging me down. I dont know...
Hello everyone its been a while since I've written but I was writing to let everyone know that I just had brain surgery. This is the craziest thing that has...
Gina, Be strong!! You are going through another rough patch but don't lose your faith or the courage to keep up the fight!! My prayers and blessings are with...
Gina, My thoughts and prayers are with you. Hang in there and be strong. I know it easier said than done. Life can get crazy and scary at times. Try have faith...
Gina, Hang in there; there isn't a challenge thrown your way that you can't handle and that won't?make you stronger...? My prayers are with you! Tina ... From:...
Hello Gina, Hang in there!!! You are in my prayers, having 3 surgries in such a short time, has got to be over whelming!!! I bet you have gone through ...
Hi Gina,  I am sorry to hear you have ben going through so much lately. Does your kidneys have anything to do with your PTC or meds you were on? I am on...
Janine, No my kidneys have nothing to do with ptc. I had problems with them way before the ptc was even diagnosed, but they had layed dormant for a lotta...
Anyone have abe to help with a Pain Doctor and or any other Doctor in the Dallas TX, area? I have a wonderful Neuro-Opth, but my PC is not being as helpful...
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