I was diagonosed with PTC about 2 years ago right after the birth of my second child. The neurologist I have been seeing for the last two years wants me to go...
Enter your vote today! A new poll has been created for the ptc group: Do you have papil edema? (Swelling of the eye tract) o Yes o No o Sometimes To vote,...
ptc@yahoogroups.com
Aug 1, 2008 10:35 pm
28065
A pain management doc can be useful because they'll know about off- label uses for meds and cocktails/mixes that other docs may not be comfortable trying. I...
My primary care doc wants me to have a new MRI, this time with contrast. I haven't had an MRI in over 3 years, and that one didn't use contrast. I know what...
Hi, I feel for your pain. I have tried every sleep medication out there for sleep, because I'm an insomniac (among other things). And nothing works for me....
Selah. I believe the contrast with an MRI is too see the 'contrast' flow thru your vessles. If Im not mistaken, it can also show if the vessles are enlarged...
Got a question do you have a shunt if so is it a programmable one I do and I have to have a neurosurgeon on standby to reset the flow rate if they do an MRI...
My neurologist refused the Brain MRI with contract stating too many risks were involved. The reason I'd asked for one is because there is another disorder...
Hi Angila. I have a VP shunt and go to pain management. To be honest, they are dicks. I hate going there and putting up with them. Find an MD who is willing to...
Ok, what exactly do they do in pain management? I did go to a pain clinic before years ago. I went because of my back and all they did was give me epidural...
My neurologist is also a pain management doctor. He's really tried, as have I, to get some relief from the constant pain. I'm not currently shuntable, so I...
Interesting that several have had most problem with left eye... I have vision loss in both eyes but my Right eye, has the greatest vision loss. Martha, 52...
We have a doc at our clinic who will prescribe marinol (medical marijuna caplets) so it is possible depending on where you live. Your insurance may not cover...
Today I will have the privilege of speaking b4 the local Lion's Club about the white cane and the laws surrounding it. My eye dr(the one who found it and saved...
Hello everyone,  I hope you had a Blessed weekend. I have a question about when you are in remission. I had my vp shunt removed almost a year ago. I am...
About 4 years ago I went into remission. Oh it lasted maybe 4 months but no more then 6 months before it came back. I wasn't sure exactly what you were asking....
Thanks Gina, my eyes are not like they use to be, but at my last appt, the doc said it looked like the optic nerve was less swollen. I guess I am in...
How would you describe the vision changes you've had with PTC? I'm starting to have changes, although the opthomologist says my eyes are "about the same" as...
Aside from my small blind spots that I only notice when I’m trying to read, I find that the words roll around on the page as if they are on top of the...
The changes in vision I have had werent very subtle. In the beginning, whenever I would blink or close my eyes and open them again I would see nothing but...
Help Win The Fight All, Today an estimated 5 million Americans are living with Alzheimer’s. And with 78 million baby boomers approaching the age of greatest...
James and Lori Dunn
Ldunn821@...
Aug 6, 2008 2:30 am
28084
OK, this is where I have to but in. When I 1st noticed my vision probs, I just thought that I needed a new pair of glasses, bcause my focus was hard to hold....
U r very welcome. I have decided that I have one of 2 choices. Either I can sit back and feel sorry 4 my self and do nothing, or I can share my story w/ppl who...
I am not sure what it is called - but there is a man made form of TLC that is available in prescription form - maybe someone can help me with the name of it -...
OOPS - so sorry about the TLC typo!! :) - gotta smile sometimes - obviously I meant THC ! and I just realized that someone has already covered that point -...
I've heard of a THC pill called marinol but I'm not sure if it's man made ... From: Daniel Mcneill <de_mcneill@...> Subject: Re: [ptc] Dr sending me to...
Just need a place to vent my worries. Had my MRI on Friday. I don't know why, but the facility gave me a set of films and a CD of the MRI when I checked out....
Selah, Some xray or mri places will give you a set of films and cd to take to your doc. But try not to worry about what you saw on there. 10 years ago I did...
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