Hello Everyone. This is my first time here. I found this group doing a search for support groups. I was looking for a place I can talk to people about PTC that...
Hi Gina, I have a vp shunt and i get those twinge pains all the time in my head ...Like at any minute I will be getting a headache. But I have had this shunt...
Hi Gina, vp shunts are wonderful as long as they keep working. Sounds like your having your "honeymoon" is over headache as I call it. I've had 4 vp shunts...
I posed this question over on ObesityHelp.com and got no responses related to the issue. I'm trying to find out if anyone has ever had a shunt (VP, VA, or LP...
Ocean, Great to see someone post! I thought everybody was throwing a party and I wasn't invited!!! I don't have a shunt...but have talked with lots of people...
Thanks, Ralpha! I had talked to my neurosurgeon about doing a VA shunt when I saw him last week, but he was gung-ho for a VP shunt instead. I've had some...
Ocean I have talked to my doctor before on this and he has told me that it is not a good Idea with a shunt because the two types of surgery they do for that ...
Thanks Tia! My neurosurgeon uses the Medtronic Strata programmable shunt, which is an excellent shunt valve similar to the Codman-Hikam valve but has less risk...
I have had mine for over 7 years I am the first one in Kentucky to ever get it and I have had no problem with reprogramming the only time I have to worry is to...
Hi, I was reading your posts and wanted to post. I hope no one minds. I am going to have or am scheduled to have the lap band surgery 6-10, I am told by my...
Hi, Sorry, I saw your original post- I am a little slow- I spent the day in the hospital with my mom. She went in the ER last night and was admitted long...
Hi, Sorry it didnt work for you. It work for me and this is where it should have taken you. Pseudotumor cerebri This site is for people living with PTC,...
the correct URL is: http://groups.msn.com/pseudotumorcerebri I have gone through the entire site and have found nothing specifically for people with shunts and...
Hello Everyone, Nice to be back on line, and check and see how ever one is doing. And glad I didn't miss the "Texas Get Together". I have been without my...
I found this website trying to found out more information about PTC. My sister was diagnosed in November 2007 so we're pretty unfamiliar with the disease and...
... PTC. ... seems ... seems ... that ... hoping ... Hello, First thing is I am glad that you found this group. Secondly your sister needs to get to a doctor...
Thank you for the response. She does see an opthamologist probably once a month to check on her papalledema...right now she has it and when she told her neuro...
Hi, After going thru agony for 6 years I finally got a vp shunt put in around late April of this year. I can tell you it is a wonderful thing. I will say,...
Hello, My name is Terri, from TN. I just read your email regarding your sister. First of all, I want 2 thank u 4 taking the time to do this research. I am over...
DaShaunda, Your sister needs a new neurologist NOW. Lasix can be used to treat IH (PTC) but not at that low of a doseage. When you say the Diamox made her...
DaShaunda, Also, this is EXTREMELY imortant! Tell your sister to STOP TAKING the Tramadol. Tramadol has a warning and should NOT be used by anyone with IH/PTC...
I agree. Stop taking the TRAMADOL RIGHT NOW. That has to be one of the worst drugs I have ever taken as far as making my IH symptoms worse. I had four...
atrophy is when something is damaged. In my case.. part of my optic nerve is damaged with no chance of repair. ... From: TERESA MEALER To: ptc@yahoogroups.com ...
Does that mean like my optic nerves have scar tissue on them, and they will never heal? Teresa Mealer vision advocate Prevent Blindness America ... From: Gina...
Atrophy is a wasting away of the body or its parts. Not so much scar tissue. Usually atrophy is irreversible. But that is a question for your eye doc....
I just wanted to thank everyone for all the information...it is much appreciated and I will pass this info on to her. She needs all the help she can get. ...
Hello - I'm a regular on other groups, but just joined this one. I've had PTC since I was about 16 (20 years ago) but had no symptoms until about 8 years ago....
Yes. Well thats what has happened with me. It doesn't do that to everyone. So dont worry. ... From: TERESA MEALER To: ptc@yahoogroups.com Sent: Monday, July...
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