Hi Tina, I would love to meet your sister - if you think she would feel up to joining us - the more the merrier! That would make at least 4 of us - now just to...
Hi Martha, Thank you for your thoughts and prayers - sorry I have been out of touch for several days - my Mother passed away on the 17th and we were out there...
Thank you. Just let me know when and where. Thanks, Tina ... From: Daniel Mcneill <de_mcneill@...> To: ptc@yahoogroups.com Sent: Wednesday, March 26,...
Well, i live in Longview. And I wouldn't mind driving out to visit if there were a few of us getting together. It would be nice to talk to someone who...
Hello Tina, Martha and everyone, Sorry I haven't been on in a little bit - My Mother passed away on the 17th of March and we have been taking care of things...
Hey y'all, I live north of Abilene and would love to try to get together with y'all at some point , if I am not intruding. I have had IH (hard not to say PTC...
Ldunn821@...
Apr 8, 2008 4:15 am
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Hi Lori, it would be nice for all of us Texans to get together. I had a VP shunt, but it was removed almost a year ago. I seem to be doing great w/o it. ... ...
Hi Lori, I grew up in Bronte and went to college in Abilene - how far are you from there? We probably just need to pick a weekend in June and - or whenever and...
This is starting to sound, really exciting!!! I would like to let the group know: That I have not driven in years but use the "Dart Paratransit" service. I...
Sorry to hear of your lose, I lost my mother in 2003 so I know it can be devastating.Yes, a saturday in may or june is fine with me. Tina ... From: Daniel...
I hope everyone is doing well. I send my angels to help you all through the tough times. I havent written in such a long time but i still read all the posts. I...
Good morning everyone... ... Just wanted to introduce myself...my name is Kim and I live in Springfield MO. I found out about 3 weeks ago that, much to my...
Yes, it is comforting to know you are not alone in this strange journey! I do not have this illness but my sister does. I try to find out all I can to help...
Hang in there. Just wondering, is anyone on disability because of this illness? Tina ... From: kiki <dewdropskerri@...> To: ptc@yahoogroups.com Sent:...
I have had this condition for almost 3 years. My neurologist has moved out of state. So now I am looking for a new one in the Denver area. I have only seen...
Hello my name is Vickie, I live in california. I am 30 years old and was diagnosed with ptc three years ago. I am on medicare/medical so I have to go through...
Hello Vicky, you're not alone. I'm in California, too. In the San Fernando Valley just north of downtown Los Angeles. I'm also on Medi-Cal and have...
Google the hospital you prefer and it should have, Find a physician, there should be a 800 number to call, tell them your situation and they should hook you...
Haven't seen a a neuro surgeon in 2 years. They all look at my file and my history with this illness and all say the same thing. "After reviewing her records,...
god to bad you didnt live in new york I have? a great neuro hes he best for my daugter, it took me four years to find him.? goood luck and god bless ... From:...
I too have had bad luck with doctors just keep geting no where prayer is helpful and a healing priest named Father Christopher Crotty/ check out web...
Hi Brandy, I live in Illinois and yes, it is very hard to find quality health care that knows about IH. Where in IL are you? I have a really nice Neuro in...
You live in IL? If you can make it to the Chicago area, try talking to Anil Gulati (he’s my neuro…haven’t seen him for years, though, since my symptoms...
Hello everyone, I hope you are having a great Monday. I wanted to know if anyone has experienced or know anyone has experienced optic nerve damage? I have it...
I hate to break it to you, but if it's been like that for a while, it's not going to get better. Nerves are a type of cell that doesn't really...
Ocean, Yes I have a neuro opth. I see him next month. I had a vp shunt for 8 months, but miracously my pressures are down. I believe in the power of Prayer and...
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