Hello everyone, I hope you had a wonderful holiday and have a blissful New Year. I was wondering has anyone experience vision problems due to high doses of...
HI - I can't say for sure it is caused by the steroids - however, I have just completed 6 rounds of chemo and prior to each chemo infusion, I was given an IV...
I hope everything is going ok with you and the chemo, is it related to the PTC in any way? While I was in the hospital awaiting to get my vp shunt, my neuro ...
Hi - thanks for your prayers - I wish I could blame the cancer on ptc but I honestly don't believe they're associated at all - I was diagnosed with stage III...
Well I believe my vision is very very slowly improving because I read now w/o my glasses and I have always kept them on no matter what. I go back to my neuro ...
Yes, that is me - it has been a while since I've been online - thank you for your thoughts and prayers - let me know how the visit with the neuro/opth goes! ...
Denia--good to see you posting. I understand that one suspected cause of IH is withdrawal from steroids...and that for some patients carrying a diagnosis of IH...
Hi Ralpha - it has been a while since I've felt like getting on and posting to be honest - my neuro would sometimes use a short course of steroids - a medrol...
Hello everyone, I am normally a quiet visitor but i am going into hospital on the 13th of February to have decompression surgery and as the day comes closer...
Hello from Dallas TX, I am about to go to bed, but had to drop you a note. Do you mean the Orbital Decompression, on your eye's? I had mine done during the...
Hey Martha, I think she meant brain decompression because she has a Chiari Malformation. I have one as well, but I am hoping and praying that I don't have to ...
Kathy, I was diagnosed with PTC in 1997 and I have a LP shunt with abdominal valve. I developed a chiari due to the shunt and had decompression surgery in...
What is decompression surgery, why is it done? ... valve. I developed a chiari due to the shunt and had decompression surgery in 2001. The preparation for it...
This is really embarrassing for me, but lately I have had bed wetting probs. I know this can b a sympton of MS, and when I was first dx'd with PTC, I was told...
Hi There, I'm an old timer to this group and you subject caught my attention. I've talked to a person with a ptc/ms combo. It would be possible I guess for ptc...
Hey Ken, Thank u for the advice. My drs are 3 hrs away. This may sound crazy, but I am afraid. Having that said, I am in the position of not knowing, so it...
Hi Terri, There are way too many causes of enuresis (bed wetting past the age at which the bladder should be established) to make any guesses about it. Some...
chdblwinnr@...
Jan 29, 2008 5:52 pm
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Thank's Glen, I was afraid u would say that. I know I am being selfish or childish, but I truly have my heart set on going 2 Washington DC on the 12th, I am...
Teresa, You get your little Heine to the doctor. Nothing is more important than your health, you can still go on your trip. Best of luck, Tina ... From: TERESA...
thanks so much for those words, and i think you're right, i think my main problem is the waiting!my head fills up with more and more thoughts about it each...
I have to say that I also encountered bed wetting problems. They were not frequent but they have happened especially when my symptoms were really bad. From...
I had my decompression surgery in 2001 and since then I have had headaches but they are manageable. I basically have a stiff neck each day but other than that...
Piha, New Zealand. Hi Everyone – I have been lurking for a long time. Old time group members will recall I have had both optic nerves operated on and 5...
Crystal, I am doing pretty good right now. My VP shunt was removed in Aug. 06 because it was leaking through my abdomen. I feel blessed. I have low spinal ...
Ok, I just made an appt for this afternoon with my eye dr. He is local. If there in not any swelling in my optic nerve, then I will seek other options. Say a...
OK, I went 2 see my local eye doc yesterday. My vision is very bad, but no paploedema. I did get shampoo in my eye yesterday morning, and it caused an...
Hi Terri, You don't have to have papilledema to have PTC. Did you go to an ophthalmologist? One of the only definitive ways to diagnose PTC is with a spinal...
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