Glen, I recently spoke to our new pain mgmt. doc. on the phone and he gave me EXCELLENT advice about shunts and all. He said to do the research online- find...
This same thing happen to me. Started in Late, 2001 amd not sure how long before the remission. At that time effecting only one eye. When it returned the end...
Thanks for the info The thing is that the ringing in the ears has never left, but for the past 3 wks the headaches have returned, and am not sure if its due...
Ooooh I am so sorry.... I live this every day also. So I do understand, and it seems like no 2 cases are just alike!!! Or the Doctor's treating this. I...
Isn’t this marajauna? _____ From: ptc@yahoogroups.com [mailto:ptc@yahoogroups.com] On Behalf Of Beth Sent: Saturday, November 17, 2007 3:28 PM To:...
from what I've looked up, it has many of the same chemical compounds as marajuana. Go to www.marinol.com to read about the drug. I'm a bit concerned because...
Hello MsDelite143: I hope that all is well with you. I was diagnosed with PTC in 2005 but am almost certain that I had it long before that and did not know it...
Hi everyone. I was wondering if anyone had a retrograde venogram. If so, how do they do it and how long is it? How long is the recouperation time? How...
Freeda and MsDelite...ditto for me! It took three years to get a diagnosis, at which time, my vision had regressed to legal blindness (couldn't leave the...
Hi Leslie, I can tell you whatever you need to know about retrograde venography. I'm not up to that much typing but if you email me privately I'd be happy to...
chdblwinnr@...
Dec 16, 2007 9:36 pm
27864
Hey Glen, I just wanted to thank you for talking with me the other night on the phone- I really appreciate all your help. The doctor that is the...
Hi again Leslie, I am going to my inlaws for the next 5 or 6 days but after that I will see what I can do for literature for you. Glen May God bless you and...
chdblwinnr@...
Dec 21, 2007 2:29 pm
27866
Hello everyone, I hope you had a wonderful holiday and have a blissful New Year. I was wondering has anyone experience vision problems due to high doses of...
HI - I can't say for sure it is caused by the steroids - however, I have just completed 6 rounds of chemo and prior to each chemo infusion, I was given an IV...
I hope everything is going ok with you and the chemo, is it related to the PTC in any way? While I was in the hospital awaiting to get my vp shunt, my neuro ...
Hi - thanks for your prayers - I wish I could blame the cancer on ptc but I honestly don't believe they're associated at all - I was diagnosed with stage III...
Well I believe my vision is very very slowly improving because I read now w/o my glasses and I have always kept them on no matter what. I go back to my neuro ...
Yes, that is me - it has been a while since I've been online - thank you for your thoughts and prayers - let me know how the visit with the neuro/opth goes! ...
Denia--good to see you posting. I understand that one suspected cause of IH is withdrawal from steroids...and that for some patients carrying a diagnosis of IH...
Hi Ralpha - it has been a while since I've felt like getting on and posting to be honest - my neuro would sometimes use a short course of steroids - a medrol...
Hello everyone, I am normally a quiet visitor but i am going into hospital on the 13th of February to have decompression surgery and as the day comes closer...
Hello from Dallas TX, I am about to go to bed, but had to drop you a note. Do you mean the Orbital Decompression, on your eye's? I had mine done during the...
Hey Martha, I think she meant brain decompression because she has a Chiari Malformation. I have one as well, but I am hoping and praying that I don't have to ...
Kathy, I was diagnosed with PTC in 1997 and I have a LP shunt with abdominal valve. I developed a chiari due to the shunt and had decompression surgery in...
What is decompression surgery, why is it done? ... valve. I developed a chiari due to the shunt and had decompression surgery in 2001. The preparation for it...
This is really embarrassing for me, but lately I have had bed wetting probs. I know this can b a sympton of MS, and when I was first dx'd with PTC, I was told...
Hi There, I'm an old timer to this group and you subject caught my attention. I've talked to a person with a ptc/ms combo. It would be possible I guess for ptc...
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