Jennifer, I have had a lot of things happen to me, but I t think PTC was the most frustrating. You tell people things and they look at you as if you were...
Holly, Well I think that what you wrote top me was about the sweetest thing I have ecer been told. I just want you to know that I really appreciate it. I read...
Rebecca, thank you for your kind words. I really appreciate them! I am glad to hear that you are healed and it gives me hope!! Best of luck to you and God...
Hello everyone. I'm glad to find this group. My problems started almost 2 yrs ago with blurring/loss of vision when I bent over. I had daily headaches and...
Hi Peggy, Sorry you had to find this group. First of all I would seriously question the wisdom of your neurologist. NOT doing a LP on a patient suspected of...
chdblwinnr@...
Sep 3, 2007 6:55 pm
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Hi Peggy, Welcome to a wonderful group of people. I would also say you should question the neuro as to not confirming the diagnosis with the spinal tap - are...
Welcome to our group Peggy! You wilI find the support and many of the answers if not the right questions to ask, here. I agree with the last two posts,...
Hi Joanne, You said you were told to advoid the use of Diamox with Topmax. Can you tell me why? I have been using 600mg of Topmax for migrianes for about 1.5...
Hi y'all. I've been gone for a while. I work at a computer all day long and can't seem to get on here much when I get home. I just want to close my eyes and...
Hi.. I was just curious as to what symptoms you were having that lead you to the ER or calling your NS... I also have a vp shunt and having lots of headaches....
Hi Lynne, sorry to hear your employer is being such an ass - legally they can not do that to you - it is part of the American's with Disabilities Act - I think...
Hi Barb, my neurologist in Rockford, IL had placed me originally on Diamox Sequals, and then after it wasn't working very well, also prescribed Topamax. I was...
Hi Joanne, Wow, thank you for sharing. So, even with your vp shunt, you need 1000mg diamox? I thought with a working shunt, that a person wouldnt need meds?...
hey hollie ive only had the shnt since july 16 of this year. it got infected and he put me on anitbiotics, he thinks its getting better, or least the tube...
Hi Heather Yes, I have experienced some of your problems. I had my first shunt placed in May this year, then about 3 weeks later the incision site started...
HI All, sometimes peppermint will help with nausea - like peppermint tea...just a thought. Also, see if you can get your dr to prescribe phenargan - my neuro...
I took phenargan for a really long time for my migrains it stopped working for me and its not to say that it will for everyone but my dr put me on zoflon its a...
Hi Kim, I was given zoflon just this last weekend in the hospital - I have breast cancer and with chemo my white count dropped to just about zero - the...
Hi Denia I was just put on the Zoflon recently about 2 weeks ago because the pressure and the headaches were killing my and the nausea also the diamox 500 mgs...
HI Holly, I understand where you are coming from. I had my first LP shunt May of this year and have had 4 surgeries. But, only one staf infection, thank God....
Hi Kim, Never apologize to us here for rambling and venting - that is one of the best things about this group - we are here to listen and many people have been...
last week when my ns told me that the ventricle had collapsed, it was like..o.k. this is the final straw. i am so tired of the pain and vision problems and...
Good morning-- I wanted to thank everyone for their posts and sharing-- I dont know what I would do without everyone here-- so for those of you that think you...
Hi my name is Joann I am from Des Moines Iowa and I have had PTC for 23 years and have not talked to anyone ever who has had this. I don't know why I quess...
Hey Joanne, Wow 23yrs, you must have some knowlegde to share. I was just dx'd last November. Please share your experiences good and bad with us. Terri from TN ...
For those of you who arent registered with IHRF - I received this email and thought some of you may be interested.... It seems like a great area that needs to...
I'm 43 years old with a real age of 46.6. My life expectancy is 71. I'm 15,983 days old today (happy birthday to me?). Not bad considering what I've endured...
My name is Cheryl. my 14 year old neice was just diognised with PTC. she has edema behind both eyes and has had blackouts were she loses her sight for a few...
Can anyone tell me what to watch out for with vp shunt malfuntion.I got my shunt in 1998 have been in a remission for several years ocassional headache few...
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