Hi Just wondering if something is wrong with our computer or what - I haven't had any posts come through in over a week so I was wondering if anyone else was...
Your computer seems fine. I have not received any new news lately either. Malissa Daniel Mcneill <de_mcneill@...> wrote: Hi Just wondering if something...
I was wondering if anyone has tried craniosacral therapy. It sounds like it would feel great, but i want to know that it will have some lasting effect, even...
Hey, Denia! My thoughts are with you...I visualize healthy bones, too strong for those cancer cells to get to! I posted yesterday to this group, and it hasn't...
RALPHA! HI! Long time no hear. It sounds like you have had a bit of bad news. I'm sorry to hear that but it is good to "see" you. Things are plodding along...
chdblwinnr@...
Aug 2, 2007 10:27 pm
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Hi Ralpha, It is great to hear from you - I appreciate the "visualization"!! It was what I was doing today - as well as going through my mantra of Hail Mary's...
i i have been posting most every day, and getting replies, mostly questions about pressure, ect. Some days, there is nothing, some there are lots. I think it...
Many of my old symptoms have come back like before I was on diamox, so my neuro wants me to double my dose I am taking now. If you are taking diamox, how much...
I was diagnosed in January and my initial and current dose in 500mg of Diamox Sequel (time released) twie a day. Malissa shayleneking <mshayking_1@...>...
thank you for the reply. Have you gotten use to the dose as it is in your body 2x a day? Can you do fairly regular activities or do you constantly feel like a...
I have adjusted fine to te Diamox. I drink a glas of orange juice with each dose, and this seems to limited the tingling in my feet. The pressure dropped...
Hi Heather, My name is Bridget, I am new to the board, as I have been diagnosed with IH, but have not introduced myself to the group yet. I am writing back to...
Hi heather! I have a VP shunt. I agree with everyone who has posted to your complaint. However, I have had it for almost 3 years now and i still have severe...
My diamox is 500 mg sequel (time released). My neuro explained it as keeping the level of medication at a constant in my body rather that a rush of med then a...
Hello, my name is Tina, I am from east Texas. I found this group searching for information on PTS.My sister has pts and goes tomorrow to see if her shunt is...
Hi Tina, Welcome to the website!! Tina-I hope your sister will visit. I am facing the same thing today. I have a lp shunt, have had three surgeries in three ...
Hey Barbara, Thanks for responding. I am sure when my sister is able she will visit this site. Sorry to hear you are having trouble with your shunt too. I wish...
Hello everyone, My name is Andrea and I am 31 years old. I am a wife to my husband of 10 years and a mother to three small children, ages 9, 4, and 2! I live...
When I was on meds (right now I just take 50mg of Topomax and 60mg of Lasix) I had to keep increasing the dose. I am not sure if it was because of the fact...
I ALSO HAD Right lower quadrant pain after my shunt was placed for a short period of time. It was as if my body had to get used to the extra fluid being...
Welcome! Im realatively new here too, and no one has responded to me, so i thought id respond to you :) im curious when you went back and your pressure was way...
Hi Andrea, Thank you for posting and sharing. I am sorry to hear that your having h/a's and vision problems. Not to mention problems with the dr's... lol ---...
Hi Andrea, You may want to ask your ns about a VA shunt - ventricular/arterial - instead of the tubing going into your stomach/peritonium it goes into one of...
hi everybody thank you so so much for all the help and understanding. i saw my ns yesterday and the general surgeon who helped, the ns started me on...
For a few mos now, my left shoulder has been sore, I figured from where I have fallen a few times, now my right one is hurting in the joint. @ the risk of...