Hi all, First I want to thank you all for your wonderful prayers and words of concern and encouragement - I'm home from the hopsital - Saturday afternoon late...
Hi my specialist has just informed me that i will be having a procedure called a Rickham Reservoir, does any one know anything about this or do you know where...
Denia and Dan, we are so thankful that you're home from the hospital. We will continue to lift you up in prayer. Dan, you're a special husband. We're praying...
Hi Lynn, Welcome to a great group of people - YES! the steroid injections can absolutely lower your pressure - however, in long term use they can increase your...
Hello to all I have a question and I am not trying to be all gross or anything but I really need to know something. Has anyone taking diamox had any problems...
Could it be dehydration? since if you drink a lot of water and then go, and it feels better? I would definitely ask my dr - perhaps your ob/gyn? I didn't have...
Hi Jennifer, There could be a chance you may have a bladder infection. Go to your primary doctor and he/she will perform the proper tests. From there, the...
Jennifer, I never had a urinary tract or kidney infection until I started taking diamox and lasix. Even though I am vigilant about drinking water...it was an...
Have you tried the diamox time release pills? I really struggled with this and trying to take the diamox at different times and my neuro found a diamox time...
- that is possible I don't drink like I should and have started drinking more and more lately so. I will go to the dr soon though if that doesn't help....
Hello everybody. I am new to this site, my daughter has PTC and has suffered with it for about 8 years now. She is expecting her first baby and is having a...
i just joined this group a few days ago and was very happy that i found it but...ive wrote in a couple of times about an upcoming surgery that im having...
Hello, My name is Michelle I am 32. I was diagnosed with PTC 2 years ago. I have a teenage daughter and am married. I quite my job last year because I began...
hi everybody, my name is heather and im so glad i found this group. i have ptc and chiari malformation. i had my decompression surgery 3 years ago for acm but...
Are you able to get time released Diamox where you live. We are unable to get them any longer here in Canada. Could you provide me with the address or name...
Hey Lynn, Welcome. As you can see, by my larger print, I have some vision loss. I am legally blind in my left eye and am regaining some vision in my right. I...
Hi Denia, Thanks for the reply. I started Topamax this week. All of my food and beverages have a lovely metallic taste now. Yum! lol Now I understand how it...
Hi - sorry to just be getting back to you - seems we have not been getting our emails for some reason - OUCH! I am sure your toe is very painful - I broke...
Hi Michelle, I frequently have problems after the taps - however, they are better now than they used to be - I have most of mine done under fluoroscopy - do...
Hi Heather, I'm so sorry no one replied - but for some reason I just received the posts today - something may be wrong with the server or something. I realize...
I will find out who makes them. My neuro wrote the prescription and my local safeway pharmacy fills them for me. I don't know if the description will help,...
Hi Heather, I'm so sorry that I didn't get back to you in time before your surgery. For whatever reason, we didn't receive the post until today (17th)....
Hi Denia Thanks for the reply. My neuro visit went well. He said my labs were all normal. He did give me the neck steroid injections again. I left there quite...
I wish I had something I could tell you about the surgery girl, but I'm new to the list also. All I can say is hold on tight, this is quite a ride. We all care...
Hello all. My name is Jyl and i live in Orem, Ut. im 22. I was diagnosed with PTC in about april, i had one mri, one spinal tap and one mrv. They've come the...
hi everyone, im very sorry if i came off prety cranky on my lsat posting...i was realy scared...my surgery went great i came home yesterday on the the 17th, my...
Hello, My name is Terri. I live in Tn, and I have PTC. When I was first diagnosed in November of last year, the drs had talked about doing a type of eye...
Good afternoon: I too take Diamox 500mg Sequels (Dura), which I purchase through Rite Aid, and before Thrift Drug. I do know that there is no generic for it....
Denia, Thank you for your kindness!!! Lying down is the only way I survive. And being as still as I possible can LOL. Can they do the blood thing before I...
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