Hello all, I wanted to let you all know that I will be having a radical mastectomy on the 29th of June for aggressive/advanced breast cancer that has...
Renee, I was diagnosed in December 97/Janu 98. SInce then I've lost almost 30 pounds... but as of about 3 weeks ago my pressure was 435. I asked my ...
Linda, I was on Diamox sequels, 1000mg 2x daily. I weaned off of it after about nine months. I didn't experience any side effects going off of it. I may be...
Does anyone know of any medication similar to diamox or when they are going to have a generic? The diamox is very expensive, it cost me $290 for 30 days. I...
I wanted to let you all know that I had a miscariage. I go back to the doctors on monday to find out if she is going to do a d&c. I will keep you all posted on...
Hi everyone, I am new to the group. I was diagnosised 1-29-07 with PTC. Not told what it was, just that I had fluid on the brain, psueto tumor. Needed shunt...
Hi My Name is Carol I was just diegnosed with BIH. I am from Rhode Island I am currently leving in Maine and going to school I am in my 30's have a very...
I went to my neurosurgeon appointment today. He wants me to have another spinal tap done under sedation and he said that depending on the results of the tap he...
I HAVE HAD AN LP SHUNT FOR ALMOST 6 YEARS NO PROBLEMS AND I FEEL LIKE A NEW WOMAN . I KNOW SOME SAY IT HAS A HIGHER FALURE RATE BUT I PERSONALLY FEEL LIKE IT...
I wanted to let you all know that I had surgery today. It was a tubal pregnancy. She had to cut some of my tube and take part of it out. She also did a D & C...
I went back to the doctors today after having another pregnancy test done. It showed that I am still pregnant because the numbers went back up. She thinks that...
Hi everyone!! I am home resting after 2 surgeries last week. I had the ICP monitoring done on Monday 7th, then that Thursday I had the VP shunt installed....
My husband are working to create a documentary about PTC and would like your help. If you are willing to make a video of your PTC experience, please send me a...
I wanted to let you all know that I won't be having a spinal tap done right now. I found out today that I am pregnant. I go tomorrow for a ultrasound. i will...
I'm looking for people with experience with reacting to PredForte or FMLForte eye drops. I had cataract surgery last week and had to discontinue the steroid...
Hi! I was wondering, does anyone else here deal with eye tenderness and aching? My right eye, which is the one where the optic nerve is swollen, is tender and...
I'm wondering if there are ptc, intracranial hypertension patients who have had experience with Plan b (morning after). If you have information, please email...
I just returned from my neurosurgeons appointment, and need some info. He is going to do a stealth guided ventriculostomy on me May 7 and if my pressures stay...
I am just curious if anyone else has noticed that their symptoms increase during the month when you may have a hormonal change (just before that time of the...
Hello everyone! I have been back and forth with Yahoo about this group and another that the moderators seem to have no working emails .. the have sent me this....
Hello! My name is Ocean McIntyre. I'm a 32 year old single mother of a 6 1/2 year old daughter who is my light and my joy, my reason for living, and we live in...
... I went back to the neuro that did my tap in Nov. Told him what the opth-neuro had said - about referring me to a headache specialist. Told him that I don't...
I was diagnosed with PTC in January of this year, but I've had the symptoms for quite a long time. It was finally when I went for an eye exam that a doctor...
We have two daughters aged 19 and 15. The 19 year old was diagnosed with pcos about 6 or 7 years ago. The 15 year old was just diagnosed with ptc. I had read...
Wow its been a while since I visited here. I had to go on web-only mode b/c i dont check my email very often. Anyways. I myself had a LP shunt put in almost...
I could have gotten 3 master degrees and software and several other things ten times over ! GO to this site!!!!!NO SPAM http://livingwithptcih.com You will see...
Hi Glen, Hope you are still here in the group - and that you are doing well! I had a tap today and they withdrew 46 cc of fluid - the most I've ever had...
Hello to all! My name is Joanne and I'm from Rockford, IL. I was recently diagnosed with PTC in January of this year. What a roller coaster my life has been...
Hi, my name is Kylie i have just joined this group but i am far from new to ptc, i was diagnosed in 2000, I am currently writing a book on ptc and would love...
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