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ptc · This is a mailing list for those who suffer from PTC. Family members, friends and loved ones are not only welcome but encourag
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Messages 27470 - 27560 of 28652   Oldest  |  < Older  |  Newer >  |  Newest
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27470
... I went back to the neuro that did my tap in Nov. Told him what the opth-neuro had said - about referring me to a headache specialist. Told him that I don't...
Brenda
bkmobes
Offline Send Email
Apr 2, 2007
8:45 pm
27471
Good Luck - I would say that you shouldn't let them rush you into a shunt - get a 2nd opinion if you aren't comfortable with that decision - My neurosurgeon...
Daniel Mcneill
DE_McNeill
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Apr 3, 2007
3:29 am
27472
I am 2 weeks post op from a VP shunt placement as of tomorrow. I have suffered from a daily debilitating headache from about September 2006 until now. At my...
Joanne
joannedelo
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Apr 3, 2007
4:43 am
27474
I have had 38 VP shunts and still suffer from headaches but my headaches are nothing compared to what they used to be plus the VP shunt saved my vision. THe...
Jennifer Jones
emttrauma_98
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Apr 3, 2007
12:09 pm
27475
Hello! My name is Ocean McIntyre. I'm a 32 year old single mother of a 6 1/2 year old daughter who is my light and my joy, my reason for living, and we live in...
omcintyre
Offline Send Email
Apr 4, 2007
1:59 pm
27476
Hi Ocean, I'm sorry to read about your possible PTC diagnosis. I say possible because an LP is considered the definitive diagnosis. Hopefully, you can get an...
CrabbyWithPTC@...
crabbywithptc
Offline Send Email
Apr 5, 2007
3:34 pm
27510
Hello everyone! I have been back and forth with Yahoo about this group and another that the moderators seem to have no working emails .. the have sent me this....
kiki
kikijrfan
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Apr 12, 2007
1:47 pm
27511
I'd vote for you. Do you know how to set up a poll? You can use my address as an "opponent" if you need one (letter from yahoo seemed to want more than one...
Jennifer Tapp
jlynnetapp
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Apr 12, 2007
2:32 pm
27512
Yes-- I wanted to get some input from everyone first. I agree to co- mods there is a way to do it. ... my address ... more than ... mods? A ... when we'd...
kiki
kikijrfan
Offline Send Email
Apr 12, 2007
2:48 pm
27513
My wife reads this daily, and since i am not afflicted with the stuff i could help moderate and would not have to worry about being ill. Dan kiki...
Daniel Mcneill
DE_McNeill
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Apr 12, 2007
3:13 pm
27514
Kiki, Congratulations on finally getting through to Yahoo about the moderator problem. I just hate the thought that the owner will come back and close the...
CrabbyWithPTC@...
crabbywithptc
Offline Send Email
Apr 12, 2007
3:21 pm
27515
E, Thanks for your support. I do to and I would be more than happy that if that person were to come back to let them jump back in. I just want to get back to...
Kiki
kikijrfan
Offline Send Email
Apr 12, 2007
3:32 pm
27516
Enter your vote today! A new poll has been created for the ptc group: Vote for new Moderator Please vote for a new moderator If you would like to vote for...
ptc@yahoogroups.com
Send Email
Apr 12, 2007
3:48 pm
27517
thanks so much Kiki. The spam is overwhelming, and we really need someone to ensure that our group stays up and running, w/o all the spam. You've got my...
Jonathan DeLorenzo
joannedelo
Offline Send Email
Apr 12, 2007
10:18 pm
27520
Kiki, How will becoming the moderator of this group impact the new group you have started? Many of us have been on this site for several years and value the...
Ralpha
rstaeger
Offline Send Email
Apr 14, 2007
4:20 am
27522
Ralpha, Hello, Thanks for your consideration, No it will not affect the other group. It is no different than what I am doing with that one. I totally...
kiki
kikijrfan
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Apr 14, 2007
4:11 pm
27537
I am just curious if anyone else has noticed that their symptoms increase during the month when you may have a hormonal change (just before that time of the...
liberty_72_04
Offline Send Email
Apr 16, 2007
1:02 pm
27538
... still ... month ... any ... YES!!! I have always experienced more pain and pressure during that time of the month, and I was also told by my Dr. to avoid...
tracy1075
Offline Send Email
Apr 16, 2007
6:11 pm
27540
Yes, I am the same way as well!! It is almost debilitating. I have polycystic ovarian syndrome, and so I am not able to even calculate when my next period...
Joanne
joannedelo
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Apr 17, 2007
12:37 am
27541
I jus recently noticed that very same thing in the last couple of months. thought maybe it was jus me going a lil bit more crazy. ... Ahhh...imagining that...
Mona Hernandez
phermoe
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Apr 17, 2007
1:42 am
27542
It's pretty common for us. I was feeling awful yesterday and have noticed the tinnitus more today, and now I'm feeling horribly "crampy." No sign of "the...
Jennifer Tapp
jlynnetapp
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Apr 17, 2007
2:09 am
27543
HI, Many of us in the group have the polycystic ovarian syndrome - prior to my hysterectomy I was on metformin - which helps to regulate your body's use of the...
Daniel Mcneill
DE_McNeill
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Apr 17, 2007
2:40 am
27544
My first neuro said that lasix in combination with acetozolamide was his choice--and that the lasix allowed the pt. to take less diamox. Well, four years...
Ralpha
rstaeger
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Apr 17, 2007
2:47 am
27550
Thanks everyone for your input. I am glad to know that I am not alone in this. I just thought, alot like most of you, that it was just all in my head or I...
liberty_72_04
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Apr 17, 2007
5:42 pm
27551
My cycles had stopped for nearly a year before I finally spoke to my doc about it. HE (MALE doc) thought it would be a "good" thing to start them up again....
Jennifer Tapp
jlynnetapp
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Apr 17, 2007
6:38 pm
27555
I have been doing a BUNCH of cleaning in here the past 2 days! [:D] I have deleted the spammers and I have temporaily set new members to be approved, also put...
kiki
kikijrfan
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Apr 19, 2007
4:01 pm
27557
I was on Lasik rather than diamox and it worked well for me. I could not tolerate diamox. I also started Weight Watchers and lost around 20 lbs so far. I have...
Crystal Carey
ugacarey
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Apr 22, 2007
9:09 pm
27558
I just returned from my neurosurgeons appointment, and need some info. He is going to do a stealth guided ventriculostomy on me May 7 and if my pressures stay...
liberty_72_04
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Apr 25, 2007
12:38 am
27559
I have noticed that my symptoms do increase with that "special time of the month", then slowly go back to what they were before it. Exercise your brain! Try...
Kelly Samuel
kellysamuel777
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Apr 25, 2007
8:26 pm
27560
Hello, I wanted to check and see how your procedure went today - IF you are at home. I did some research on the ventriculostomy you mentioned - it certainly...
Daniel Mcneill
DE_McNeill
Offline Send Email
May 8, 2007
12:19 am
Messages 27470 - 27560 of 28652   Oldest  |  < Older  |  Newer >  |  Newest
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