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sherry-heath267@...
Mar 1, 2007 8:25 am
27376
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sherry-heath267@...
Mar 2, 2007 2:27 am
27383
Hi, my name is Kylie i have just joined this group but i am far from new to ptc, i was diagnosed in 2000, I am currently writing a book on ptc and would love...
Hello to all! My name is Joanne and I'm from Rockford, IL. I was recently diagnosed with PTC in January of this year. What a roller coaster my life has been...
Hello Joanne, welcome to the PTC group. My name is Janine and I was diagnosed 8yrs ago. I did have a LP shunt , but this past September it was removed ...
Hi Stephanie and welcome. What kind of shunt do u have? The reason why I ask is because when I had my LP shunt everything gave me a headache, but now I have a ...
Hi Stephanie, I do not have a shunt but there are several people here who do and still suffer from the headaches - Do you have the shunt? The surgeon told me...
Hi Stephanie You don't say in your mail what kind of a shunt you have, and what other symptoms other than headaches you are experiencing. The reason I say ...
yes i do i have a vp shunt and i had it in since aug,2006 and i am 23 years old and pregnet with my second child and i get real bad headachs even before i was...
I have a vp shunt and the catheter is in the center of my brain, I have had this one for two years. that is the longest anyone shunt has lasted for me. My...
I have a vp shunt and the catheter is in the center of my brain, I have had this one for two years. that is the longest anyone shunt has lasted for me. My...
That is interesting that your sister also has the same problem - I hope you find some answers! Denia stephanie campbell <scampbell277@...> wrote: I have...
Hi Glen, Hope you are still here in the group - and that you are doing well! I had a tap today and they withdrew 46 cc of fluid - the most I've ever had...
Hello Denia -- your post peaked my interest. I have yet to hear anyone speak of possible brain damage due to too much fluid for a prolonged time. As for the...
Hi Denia, Its nice to hear from you. Its also nice to hear you had a good tap. Unfortunately the correlation between the cc's of fluid drawn off and the ...
chdblwinnr@...
Mar 14, 2007 6:40 pm
27405
Hello, I just wanted to say that my doctor tells me i have the ptc and also migraines and it is hard to deal with it all. But i also have a hard time...
Hi Brenda, I was surprised myself - I had my own thoughts as to the long term affects on our brains - but had never read or heard anything about drs. agreeing...
Thanks Glen, I wasn't sure if there was a correlation or not - and as always, you've been a great help and source of information! I hope you are doing well and...
Hello, I don't really know if I can provide further info or not - but as a teacher the problems with speech and memory are very much a problem for me - and I...
Thanks for getting back to me. I've been thinking for about 3 weeks now - I need another tap. However, I'm on the Diamox - and figured that would give a...
Yes, I would call my neuro - and tell him you need a tap - that the diamox isn't working and you want to check your pressure. I know some people have been on...
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Wow its been a while since I visited here. I had to go on web-only mode b/c i dont check my email very often. Anyways. I myself had a LP shunt put in almost...
My oldest daughter (15yrs old) hasn't been diagnosed, but I believe she has it (same symptoms I have). I believe that my late mother also had it (again, not...
We have two daughters aged 19 and 15. The 19 year old was diagnosed with pcos about 6 or 7 years ago. The 15 year old was just diagnosed with ptc. I had read...
IS PTC (IH) GENETIC? That is a question that many people with this diagnosis have asked...the answer: no one knows for sure, because it has never been...
It is Dr. Charles Glueck with the Jewish Hospital in Cincinnati Ohio - You can google him and you will find all kinds of information on his studies - Good Luck...
I was diagnosed with PTC in January of this year, but I've had the symptoms for quite a long time. It was finally when I went for an eye exam that a doctor...
