Hi Everyone. I am hoping to gain some knowledge of PTC and get some ideas of coping with it etc... I am 26 years old and until now have been relatively healthy...
I have a Neurologist I would not recommend to anyone. My regular Neurologist sent me to him for a 2nd opinion. He is not willing to treat me and doesn't...
I have a friend with this fabulous disease also and she recently ended up in the hospital. Her pressure had gotten so high that her face began to swell. The...
I have periodic swelling in my face (as well as everywhere else). I've been able to "manage" my PTC for the most part with lots of caffeine and lobelia drops...
Since I am kind of new here I Was wondering if any of you know what caues PTC? My docs arent a lot of help in this area. Some say it could link back to...
hey im 21 and diagnosed in march and lp shunt fitted in april thi year since then sympyoms been pretty good and far between. the last few weeks ive noticed...
So - I did 1000mg a day of the Diamox. Saw the Neuro Opth yesterday. Eyes are somewhat better. Headaches have not ceased at all. So - she has taken me off...
Topamax, may help you lose weight so the theory goes, Diamox, helps prevent fluid build up, going off Diamox makes no sense, and if you talk to 10 people...
I am on Lasik for my PTC? Is that normal? I have to drive an hour each way to law school and the diamox was making my hands and feet go numb so they put me on...
I am new to all this, but the LP wasnt that bad for me. The neuro actually did it in his office. I m sorry Im not much more help, but good luck with...
Just curious of where I can find a Neuro Opth? My husband is in the military and there are no neuro opth specialist in the military hospitals. Can anyone...
It does not say headache cream, face cream, any kind. I don't use pain killers, and the pain never completely goes away but the cool FACE cream is soothing....
Where are you located? ... the military and there are no neuro opth specialist in the military hospitals. Can anyone help point me in the right direction of...
The neuro that did my LP was just full of info. Did you know that our bodies produce 1 cc of cerebralspinal fluid a minute? That's what he said. He drained...
Hi Brenda, My daughter is on 1500mg of Diamox and 50mg to Topamax. I'm surprised your doc took you off the Diamox. She was originally on Diamox 1000mg daily...
I was confused. I called the doc office back.....I am to stay on 1000mg of Diamox - and add the Topamax to it. I did fill the script for the topamax- and...
Crystal, My daughter drinks gateraid and she says it stops the numbing and tingling in her hands and feet!!!! She swares by it. Sincererly, Jackie Crystal...
wow ok that sounds like a good idea. I go back to my regular opthalmologist on next thursday and am assuming she will send me for another LP if my pressure...
Just looking for no strings fun I`m 21 years old and I love to dance and Enjoy chatting and flirting online . I`m a freshman in college and I`m looking for men...
Do doctors just not hear me when I say things? I am so frustrated. I went to get a copy of my records from my old neurosurgeon. Up until this point I had no...
I just have a question about not taking meds to help relieve pain - is there a reason why you don't? I know some docs do not like to prescribe pain meds but we...
I've been told that within 24 hours our pressures will be back up - but my taps give me longer relief than that - so my theory is that the reduction in...
I am on 2000 mg of Diamox a day plus Lasix. I do not notice much difference in my headache pain but the opening pressures are lower than what they used to be....
I was a zomby on diamox and an even worse one on topomax - I can't begin to imagine taking them both at the same time - I agree about your work collegues being...
So - I've decided that all of this is a guessing game. My doc even admitted that since they don't have a definitive reason for this condition - therefore,...
yes thats all it is a guessing game my son's doctors are doing that now with deciding about having him off his medication for his spinal tal or not to take him...
Hi Brenda, My docs have no idea what is causing it in me either...I am not overweight and am in fact in great shape and continue to work out at least 4 times a...
Now - there's a similarity. I work on a computer all day long. 8+ hours. Spreadsheet after spreadsheet - internet - all day long. And - I have a tendancy to...
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