I believe that we all need a special prayer on a daily basis. My aunt sent this to me, but I think that everyone should read this, it has very special meaning....
Back in the beginning of my diagnosis I remember my doctor saying something about my pituitary gland being deformed and now I am having SEVERAL problems that I...
Hello Crystal. My dr's told me that my pituitary gland is crushed. I have a lot of the same problems that you are experiencing. They said that it was because...
Hi Crystal - I've also been told my pituitary gland had been crushed by the build up of fluid - I have hypothyroid problems and typically one test will read...
Hello, My doctor's have never said anything about my pituitary gland but I have all of those symptoms. I did recently have a thyroid test and that came back...
Hello Happy 4th of July I don't really know what to do any more. There maybe some changes in my vision but I have really bad vision to begin with so I am not...
im hosting a bih awareness weekend in devon uk in november just trying to raise awareness and fundraising for the condition. it will be a cheap half board...
to my knowledge there isn't anything that can be done for the pituitary - but I am not an expert - that is just what my dr told me at the time - I hope you get...
is any one intrested in ptc/bih awareness weekend for sufferes and families in devon. will be a half board cheap weekend in november. a chance to meet and...
This is not a question but rather a statement. I guess I just wanted to get it off my chest and some of you might be feeling the same way so I wanted to share...
Wow, that was very touching and exactly the way I feel. That is the right attitude to have and we should all think that way. Someday they will find a cure for...
MagickPixie70@...
Jul 5, 2006 3:23 pm
26836
Hi Tracy, I haven't tried Acupuncture (yet), but I have tried Cranial Sacral Massage. I've only been twice so far, as I've just started, but it seemed to make...
My doctors have told me that I should not travel on airplanes because the drastic change in pressure will cause serious damage to the eyes and brain. Has...
I probably will not ride any more roller coasters or fly any more because I'm scared to death it will affect my LP Shunt. Why did the LP Shunt do that to your...
MagickPixie70@...
Jul 7, 2006 11:40 pm
26840
I would personally never get on a plane with my puffy head unless all of my symptoms had been gone for a couple of years (why take the chance, you know?). As...
hello Crystal i have also heard not travel on airplanes or rollercosters. Most of the time i have just heard there headache gets extremlly worse. Most people...
Crystal I had a LP shunt inserted, but I ... __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam...
Crystal, I have a lp shunt and I have had no problems on a airplane, but I did not have a craniotomy. I do not ride roller coasters because it does give me ...
Denise how did your appt go with your neurosurgeon, mine was rescheduled due to an emergency ... __________________________________________________ Do You...
I havent been on here in awhile, since I've not had problems for a while. Originally when I was diagnosed the dr thought the trigger had been birth control...
I seen my neurosurgeon last Friday the 30th of June. He told me that all I'm experiencing is normal and he wants to further evaluate me in another month after...
MagickPixie70@...
Jul 8, 2006 3:31 am
26847
Hi Tracy - We went to Pike's Peak last summer - My headache did gradually increase as we climbed in elevation from central Texas to Colorado Springs - However,...
I've had my LP shunt for 3 years now no problems. I don't keep up with the board much because I consider myself in remission with PTC. I myself would never...
Crystal, The first time I flew after my diagnosis, I anticipated problems and discussed them with my neuro--he said stay hydrated and rested--and not spend...
I don't think what you are experiencing is normal, now that is just my personal opinion, that is why I am going to get another neurosurgeon before anything ...
That would probably be a good idea to get a second opinion with any neurosurgeon. I think you may have to travel to Dallas in order to find another one though....
MagickPixie70@...
Jul 8, 2006 11:52 pm
26852
I already have a couple in mind that were in the one that retired last year and they are really good, no bedside manner, but are really good. I don't go to ...
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