Hi Jeanne, It is great to hear from you! I am having a hysterectomy on the 15th of June - so I'm hoping the extra chin/facial hair takes a vacation after that...
Vickie, I saw Dr. Glueck back in November and he is AMAZING!! He has noticed 2 major issues that he thinks either cause or contribute to PTC, blood clotting...
I am taking 200 mg of Topomax daily and doing very well on it. My neurologist says that is the lowest dose of Topomax that PTC reacts to. Many of his PTC...
I live in Brooklyn and use Dr. Adams in Columbia Presbetiran. He told me that Gynecologial disorders are very common in PTC patients. I have endometriosis and...
Hi! I have a few questions for those of you out there. One, have you noticed any effect on your thyroid or pituitary after PTC? Two, has anyone had to ask...
hello everybody, Wanted to let everyone know ,Jonathan went to his new neurologist 2 weeks ago and we like this doctor a lot. His 2nd visit was today he...
Hi Tracy, I have huge problems keeping my thyroid regulated with meds - mine was originally over active and they took out the majority of it and then I ended...
Good luck Michele - and give Jonathan a big hug from me! My brother (older) is going blind due to a different optic nerve disease but still - and of course he...
nothing has been mentioned about lyme disease with him, but i will definelty check with the doctor if its a possibility. thank you for the info. hope you feel...
Hi Denia! I read your first post about the hysterectomy. Sorry to hear you've got to go through that. I am also very curious to know how it effects your PTC...
Hi! and NO I'm not lacking padding any where either!! I've often thought if I could only find a way to "sell" some of my excess bust I could make a fortune!!...
Denia, sorry to hear you are having a hysterectomy. I had one in January. My gyn said no hormones what so ever so was wondering about that. My neuro opth...
ThanksAnji - I appreciate it! How long was your recovery? She said mine would be longer than normal due to fact that they are having to separate several organs...
Hi Tracy, My Neurologist told me that it is very common for PTC to effect the pituitary gland. He also did an MRV a specialized MRI that is looks at the veins...
Hello, My neuro has said it is okay for me to take the hormone replacements after my hysterectomy next week - but I really thought I had read somewhere here...
Well Denia, I haven't heard of anything, but I had my hyst before I was diagnosed with PTC. I am presently a very low dose of hormone replacement- .5 and I may...
i'm just curious, is this a normal dose for the topomax? i just recently started taking it about two weeks ago, and my neuro has started me on 25mg for two...
Hi - thanks for the input - she is going to start me at a medium dose - whatever that is so that there isn't a drastic change in my body and then see if we ...
Hi Mona, Your doses of both diamox and topamax seem pretty normal - I was up to 400mg of topomax and it is very normal for her to raise the dose gradually - I...
I can't speak for everyone on the weight issue, but... When I was originally diagnosed, I was very overweight. All I heard was, "Lose weight!" I lost 80+...
I want to thank everyone for there help and advice. I have gotten so much input and support - it has been wonderful. I am definetely going to ask the doctors...
I liked these cause they have been true in my life. I should have been dead 3 times for sure and could have been many more. " don't sweat the small stuff!" As...
Hi Mona, It is normal to start Topmax on 25mg and gradually increase it by 25mg. My nuerologist increased it on a weekly basis until I reached 200mg. At that...
I am nervous about the surgery and the complications with shunts, but if it makes me feel better. I have had PTC for 1 year and have been on numerous meds but...
Hi Tracy - I was diagnosed in Feb. 2002 and since the meds were able to stablize my vision my dr has only just within the last year suggested going ahead with...
I was wondering if any one else has had a concussion while having PTC? I got a concussion at work about 2-3 weeks ago and my PTC seemed to get worse. I am...
Hi Tracy, I got hit in the head with a basketball (quite by accident) at school - and it wasn't even very hard - but was right at the base of my head - anyway...
I was wondering if anyone has seen an endocrinologist? I have been piecing together information since I am on the search for a new neurologist. Many say to...
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