I just joined the group today and wanted to get more information about PTC because I am still in the dark about what it really is. I am not even sure when it...
Last night on Lil People, Big World the show was on Zach's shunt failure and revision. It airs again tonight, Sunday night at 10 on TLC. If you get the...
I was found to have PTC in October 05. I have had vision loss and am having problem and haven't work since October. I am a single mom and my savings are...
Hi Lori, Yes, others in this group are on disability - I know some got it quickly - others did not - Hopefully they will reply to you and give you some insight...
I'm not personally on disability, but I know that a LOT of people on this list have had a LOT of problems getting onto it (had to keep trying and trying and...
I lost my job because I was in the hospital to much. I live in Green bay, WI. I am getting a lawyer to help me with my appeal. Thanks for your help ... ...
I'm not sure - but I think you should also talk to your lawyer about the fact they let you go due to your medical issues - Were you eligible for unemployment...
I ended up having a conversation with a nuero-oncologist and he was able to definatively anwser the "patients with out papilladema" question. I'll explain as...
You should definately talk to a lawyer. They are supposed to offer you FMLA (like Denia said) and that would be violation of federal law. Even small ...
I often run around 99-100 - my body itself is usually very warm and when my pressure is up my body feels even hotter - my husband says it feels like my skin is...
Hi, Your docs need to hunt down the true cause of your fever. You currently have a fever of unknown origin (FUO) but unless the PTC has damaged particular ...
chdblwinnr@...
May 21, 2006 2:24 am
26693
Hi Glenn, Denia here - any ideas about the cause of my hot skin? or low grade fever? It's been a while since I've seen you post - hope everything is good with...
That's interesting when my pressure is up the oppisite is true. I get very cold. Everyone can be warm and I'll be bundeled in layers and still be cold. My...
Yes, it is weird how it affects us all differently - the blood clotting issue your dr suspects is very important - there are studies which show that tiny...
Hi all, I just wanted to let you know that I went in today for my SSI hearing and it was granted.... Thank God almost 4 years later! I did not have a lawyer...
That is super for you! I know you are relieved!! Denia Kristina <kltaylor@...> wrote: Hi all, I just wanted to let you know that I went in today for my...
Hi I'm Elizabeth, 33, married for seven years with no children yet. I was diagnosed three years ago after weeks of having a headache. It finally got so bad I...
Hi Elizabeth, and welcome, my name is Janine and I have a lumboperitoneal shunt. I have had it since 98 and have it revised once and that was in 99. I pretty ...
Hello to all! I hope that everyone is having a great pain free day. I have a quick question. I was on Diamox for 1.5 years. Came off for almost a year now. I...
Topamax, various diuretics (I just drink a lot of coffee.a natural diuretic, occasionally take some Reishi mushroom capsules and ginger capsules.taken together...
Hi Jennifer, I also can not takie Diamox. It gave me an irregular hearbeat. My neurologist switched me to Topomax and I am doing well on it. Good luck to you. ...
Thanks for the responce. I will admit I was getting anxiouse just thinking about what to do now. Do you have any side effects from the Topomax? Thanks, ...
That is funny cause I can't do coffe cause of my stomach LOL Someone else also said something about topomax. My mom actually said somehing to me about ginger....
HI Jennifer - I couldn't tolerate the topamax - extreme lethargy, loss of time- felt in another world etc - but for some I know it is a wonderful thing - Good...
Reishi is a balancing "herb" (not really an herb, but you get my drift). I'm not sure if it gets rid of excess fluid or what, but I do feel better when I take...
Hi, I'm Christine. I live on the east coast of FL. I was diagnosed with PTC in July of 2005. I also did the diamox route, have an atrophic kidney, and...
I was diagnosed 2003. I had one doctor want to do spinal taps all the time. I switched to another doctor who just wants to get me hooked on vicoden. Does...
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