Sonja- Welcome to the group. It's a wonderful group. I have had PTC now for over 5 years. I have had a vp shunt in for over 3 years. Somedays I feel fine and...
I was diagnosed with PTC almost 5 years ago. I realized something was wrong when I winked and my friends head disappeared. The more I read and understand about...
I just went for the first time last week. Spent over 2 hours with her. Very impressed but she feels that LP shunts don't have a great track record for us and...
Hi all, It has been forever since I have posted. Once again we are expecting.. for those of you that don't know me this will be number 5. My long lasting PTC...
I've recieved this article from four sorces now and thought I'd weigh in. I went to the costco site, which tells you the price of the meds and found that only...
Hi there, As far as symptoms are concerned with pregnancy, I understand that it's different with every person. My obstetrician said that about a third of...
Congrats and good luck! ... From: "Kristina" <kltaylor@...> To: <ptc@yahoogroups.com> Sent: Wednesday, February 01, 2006 5:16 PM Subject: [ptc] Pregnant...
congrats to you and your family, I too have 5 my youngest is 17 months, Jonathan who has the ptc is turning 7 on february 11, he is my oldest.. Alicia...
I can't speak for pregnancy, but as far as the other two questions - they don't know. There really haven't been enough studies or anything else to even know...
I was dignosed with ptc last september, my neruoloigst put me on topamax I have the worst time with it. I can't remember nothing, I have failed a class in...
Congrats and good luck. You'll be in our prayers. _____ From: ptc@yahoogroups.com [mailto:ptc@yahoogroups.com] On Behalf Of Kristina Sent: Wednesday, February...
Topamax is used mostly for weight loss and it does help some with headaches, don't take anything that makes you worse, as far as your Doctors, get a field test...
I found this to be the case for me also. _____ From: ptc@yahoogroups.com [mailto:ptc@yahoogroups.com] On Behalf Of Alicia Sent: Wednesday, February 01, 2006...
I am soooo upset and just don't know what to do! Long story short, I was diagnosed with PTC a year ago, almost 1 year after getting sick. I have been seeing...
Dear Shaylene, I know that the people on this site can help you with that info. you need. It IS TRUE that you don't have to be overweight to have ptc. I...
Shaylene, I also had a neurologist who doubted my diagnosis because I wasn't "heavy enough and didn't have debilitating headaches" for the most part. She ...
Unfortunately, that's normal. The only thing I can tell you about topomax is that it gets better with time. People in the medical feild aren't always ...
Ramble a way. I know it's frustrating, but try to minimize it. Frustration, anger etc. increases your pressure. I know- easier said then done. See if you can...
Hi Shaylene, I'm sorry you are having such a frustrating time! If you want a second opinion, I would recommend Dr. Julie Griffith. She's a Neurologist in...
yes i would like a copy of that for my son. I have no idea if its hereditary I myself have wondered about that too. I still have a lot of questions not being...
None of my girls (14, 12, and 8) have been diagnosed with anything, but I've noticed that all of them have problems. My 8yr old often has headaches, but I...
Alicia, Thank you for your insight! I think I will email him after I find some PTC sights or research that talk about it not being just for overweight people...
Thank you Christine! Shaylene ________________________________________________________________________ Try Juno Platinum for Free! Then, only $9.95/month! ...
Jennifer, No, he did not say what he thought it might be, only that he wondered why I was not just treated for headaches. I told him all the other problems I...
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parkinson3@...
Feb 3, 2006 6:11 pm
26437
I do have some, it's just a matter of getting to it. It's in with my records. I just have to feel good enough to get through them. We have a huge front...
Hi, I hear what you are going through. I could not take topomax either. I don't like being out of my mind and out of control. You CAN have ptc without bad...
Tabatha, You are not crazy - topamax for me was also a horrible experience - ptc gives me plenty of memory problems all by itself and the topamax compounded...
I also went last week for my first appointment with the neurosurgeon. He checked my previous MRI's and said that my ventricles were too small for a VP Shunt....
