She's OK. Unfortunately, we're still having some problems (which all relate back to the eye Dr.) If I had it to do over again I would've found a different...
Just curious, who did you see at Shands? ... From: Christine Smith To: ptc@yahoogroups.com Sent: Thursday, December 29, 2005 9:20 PM Subject: Re: [ptc]...
Dear Hollie, I just read your email and i had to write back i just had to share my experience with you and show that we are never really alone in this which is...
Hello Kathy, Just got your email this morning and I felt that I needed to write you back. While I was reading your story, I could not get over how much it...
Hello I have a really quick question about a side effect of the generic diamox (AGAIN). I have currently been taking it now for about 2 weeks and have notice...
has anyone been able to get accepted for disability? Or heard of anyone? Thanks Kim Daniel Mcneill <de_mcneill@...> wrote: HI Hollie, Yes, I work - I...
DR. Bhatti ... From: Alicia To: ptc@yahoogroups.com Sent: Sunday, January 01, 2006 11:57 PM Subject: Re: [ptc] Question Just curious, who did you see at...
I receive disability, I really did not want to, but if I lied about my condition and workman comp found out they let me go, and if I didn't lie, no one would...
Hollie and Kathy, You may want to also request/demand that they do your future lp's through the use of a fluoroscope - it is like an x-ray machine which helps...
Hi Kim, Yes, there are some who have qualified for disability - I am just not one of them - I think you have to be off work 6 months or something - and for me...
PIMPLES.......YES! I have pimples around my mouth and on my chin but most disturbingly on my upper back almost like boils sometimes...gross! I never had a...
Hello, I was diagnosed with PTC in March '04 and now am 33 weeks pregnant. I have seen great improvement in my condition (no thanks to any medication which I...
HI Mary, WOW! lots of decisions for you - First, I don't have any kids and have never been pregnant since the ptc was diagnosed. So, I really can't advise you...
I got it, but not on PTC alone. I also had a major stroke from surgery. But I have heard of people getting it. You may want to look into an attorney just in...
Ok. I was just hoping it wasn't this IDIOT doctor I had. He had the audacity to tell me it wasn't PTC, it was because I was a woman in the workforce. Can...
Hi everyone Thanks so much for all of your replies on the question I posted the other day reguarding the pimple situation. I feel so much better knowing that...
Holiie, Don't be silly. There are no dumb questions here. This group holds a wealth of knowledge. They've all been a HUGE blessing to me. That "squishing"...
well... recovery time. that's a toughie. The first one hurt more than the rest of them, probably because he cut through more muscle and moved more organs....
I find this really interesting. When I was first dx'd with PTC nearly 30 years ago... wow... I was prescribed diamox sequels. When I had the recurrence...
Yeah, I truly do. Dr. Bhatti kept insisting that I had to have gained a very large amount of weight in order for this diagnosis to be confirmed. Over the...
Where do I get this newsletter? Is it on the web? ... From: Tracey Gotham To: ptc@yahoogroups.com Sent: Wednesday, January 04, 2006 2:03 PM Subject: [ptc]...
Go to www.ihrfoundation.org I think it is under the foundation news button. I just read it myself, it's great!!! Christine Smith <mykidsmom@...> wrote:...
hi, my son is taking a generic version of diamox called acetazolamide.he hasnt broken out with any pimples but has had other side affects from it. he has been...
I have been on diamox for almost a year and yes, my eye will hurt behind the eye and feel tight! I have kept a log of when it happens and for me, it happens...
thank you for letting me know, yeah i have noticed he complains more when he has been playing than if he has been laying down. he had a spinal last february...
Okay - thanks! The surgeon is saying I will go home the next day - that I COULD go home the same day but that he likes to keep me overnight just to make sure...
Hi Michele, YES! My eyes hurt frequently - also when I move them they hurt - if that makes sense - like they are "full" - it hurts to put on eye shadow, wash...
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