Hi everyone, My name is Mary, I'm 26 years old, married with two beautiful children, 5 years old girl, and a 3 years old boy. I'm from Fayetteville, NC, came...
Hi, Just wanted to know if anyone out there was diagnosed when they were pregnant. My doctors told me it was rare, but it happened because I had gain 20...
Hi Mary, welcome. My name is Mary also, I am from Wilmington, NC, well near there, but I live in NH now. You will find, lots of answers and support here....
Hi to both of the ones in NC named Mary. I live in Shallotte. We oughta get together and gripe sometime. Good to meet you both.
Ken --- jessysgram@......
Ken, I used to live in NC, I am from there, but, now I live in NH. I have been a member of this group for a long time. Someday, I am going back home, but my ...
Hi Family
There is a drug out there that helps both depression and pain. I found out about it at depressionhurts.com (great site by the way). It's called...
Thanks Ken! Hope you and your family have a Blessed Holiday Season - a Merry Christmas!! It is good to see your posts here - are you still doing well? How is...
Cymbalta didn't work for me. I took one pill and ended up with my face in the toilet bowl. My pressure spiked and gave me a horrible headache. I ended up ...
Hi It's been a long time since I have posted. But I have still been checking in regularly and reading your posts. But now I need some answers. I would like to...
Your eye Doctor would be able to do a field test to help your Neuro decide how much fluid has built up. I do not have a shunt, and when my field test says, I...
Hollie, All your symptoms were the same as mine and for 8 months I struggled daily with it while they did sooo many tests. Finally, they did a spinal tap and...
Hollie, You poor thing. My symptoms are similar when my pressure gets too high. Maybe next time you can have a back up plan of a friend who will go with you...
Hi Hollie, I'm so sorry you are having such a hard time right now - You definitely need to at least try a tap - as others have said, the relief may only last a...
But, you don't have to have papilledema to have high pressure - in fact - the last two times I've had taps, my pressure has been the highest ever - and NO...
How could that be right? I mean PTC is fluid sitting on your vessels behind your eyes, pulling and stretching them, how could your field test be perfect? If...
I want to thank all of you for your responses!! Just to fill you in a little on what has gone on since my post.... My neuro's office called me yesterday and...
A quick update on my quest to get some relief. I called my neuro's office again this morning. Well, come to find out, she is not in the office on Friday's at...
I don't know how it works - but there are many documented cases of ptc w/out the papilledema - several people in this group actually. To my understanding the...
Denia, I've never had papilledema or an abnormal field vision test either. During my worst pressure period I did get black pinpoint spots in my vision and most...
Hollie, I'm so sorry your head hurts like that! Not everyone here agrees with my method (OTC, baby!) but this is what I take for head pain: most often I take...
Hi Jeanne, Hope you are doing well this holiday season - I agree completely - the idea of where on the brain the fluid/pressure is - and I truly believe it can...
Hey Denia, Merry Christmas to you too. And I am also wishing you less head pain and less foot/ankle pain in 2006. :o) We all know the drs. don't know that much...
hi hollie, my name is shanda and i was w/out a shunt for 7 months. but befor i was diagnosed, i had all the things you do.my husband thought i was crazy.the...
HI guys. It has been awhile since I posted, so I decided to check in. I had my VP shunt placed in September and I have never been so miserable. I thought I...
is there any relaton between ptc and blood clots? and is there any drug out there that reduces the production of csf besides diamox?please help!!!!! the only...
Hi Shanda, My name is Brandie and I have a VP shunt for only 4 months. I don't know much about them. You would think I would research something before letting...
Hi Shanda, Yes, according to Dr. Glueck in Cincinnati there is a definite relation between certain clotting disorders and ptc - as well as ptc and pcos. You...
I just wanted to wish everyone a happy and healthy holiday and new years. Sorry I havent responded to any postings in a while life has been rather crazy....
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