HI Donna, Isn't it great we can laugh at our ptc goofs! I hope you really didn't hurt yourself either - that would be my luck! Thanks for the chuckle - I have...
Good morning everyone, I hope you all are feeling well and pain free. I have been experiencing a headache for the past 3 days now. It began on Wednesday in...
Hollie I have never been able to define what my headaches are but mine are the same as you are explaining. The one I have now I have had constant for about 3...
Donna, You described my headache so much better than I ever could have. Thanks so much for that. Although I am sorry you are having to suffer with this and...
Hi Hollie, Yes, that sounds like a pressure headache to me - I've been having one since the 24th of August - it does go down into my neck and spine and even my...
Hi Donna, YES! that poking through a specific part of my head is exactly how mine are! and they go down my neck and into my spine - but usually the part that...
So now they say its not PTC (just Migraines), but cant explain why I have the elevated CSF. So they now have me on Atenolol. Back to square one with NO...
Why else would you have elevated csf? Atenolol is what my husband takes for his high blood pressure - .......my blood pressure skyrockets when my pressure is...
Sorry I've been lost lately. The reason nueros don't like to prescribe pain meds to us was explained to me by a nuero-anesthesiologist (I can't beleive there...
I had petit mals for a while secondary to my ptc. They started giving me anti-seizure meds and they went away. If your taking anti-seizure meds, your levels...
Hey, Donna, Not sure what to say except that I send you a *hug*. If only the doctors that treat and or "mistreat" us could walk in our shoes......only for a...
HI Alicia, Good to hear from you - how are things for you? I am a good example of the pituitary issues - and the reason given me was due to the pressure - or...
Do you think what I was experiencing was a petit mal? Denia Alicia <aliciams@...> wrote: I had petit mals for a while secondary to my ptc. They started...
T thanks you guys, I did some research last night about elevated CSF the only other thing I can come up with is Chairi Malformation, anyone have any info on...
I am curious as to what is chairi formation? I've heard it so much but I looked up and I still can't find out what it is. Will someone please explaine. ...
im sorry im so bad at names, but someone asked about chiari malformation, and i dont remember the name. i have chiari malformation and ptc. chiari is when...
Donna, I was having all the symptoms of PTC and they also were a lot like Chiari Malformation. WHen they did an MRI, they found that my cerebellar tonsills...
my hubby has been diagnosed with this..as of yet we do not know much info on this... one of the things we would like to know..is does this condition hinder...
I do not have difficulty traveling long distance in cars - and haven't flown since being diagnosed. However this summer we did travel to Colorado and went up...
Hi Karen, I've had worsened symptoms flying to Denver (I live near sea level) but not to Florida. Also suffered after going up to Reno, another high altitude...
Jeanne
mom2curtis@...
Sep 5, 2005 8:36 pm
25829
ty for that...he isn't badly affected...we need to fly to uk pretty soon urgent family stuff...we can't afford other transport ... ...
Hello everyone. On Friday, 9-2-05, I had a VP shunt placed in because my vision was 20/800 and now it is 20/70. I would have to say that this surgery was the...
Hi all, I just flew for the first since diagnosis. The change in cabin pressure sent my pain level thru the roof during take-off and landings. Once we were...
Hi Brandie, I am so sorry you are having such a hard time with this surgery - That is the main reason I have put it off - that and the idea of them cutting...
Thanks things are good but all negativity about the storm is killing me. Last year we had 3 hurricanes hit us and North Carolina had Hugo (a cat. 5) which was...
I was actually thinking more along the line of what they call a focal motor seirure. It's far more localized and tends to have what I can best describe as an...
hi deb. in my case of chiari the herniation was 11cm, but there are some that go into the 20,s. there are somne cases where ther is 0 herniation so the...
i have a real quick question, i got my eeg results from my neurologist, actually the report was in some other paper work he gave me, hes never explained them...
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