When I first got ptc, it wasn't my head that hurt, I would loose my vision and see beautiful shapes and things. I knew it wasn't right but it didn't hurt....
Shelly I had double vision too.... it's called 7th? nerve palsy. Mine was caused from increased intracranial pressure. Once the pressure was regulated, my...
Remember.... the FDA does NOT necessarily, and in most cases does NOT, approve these "herb" supplements, diets, etc. It takes years and tons of money and...
Sorry Deb that you are having such a bad time. Many of us can relate to much of it. PTC takes a toll on us and those around us... my fiance left me as...
Thank you so much, he does have papilledma and has had a vp shunt placed in June 2004 with 4 revisions since. His last one was the 21st. Did your double vision...
Hello everyone, First I would like to say I am so happy I have found ya'll!!!!! I was diagnosed with ptc about two years ago after a cat scan, mri, and spinal...
Hi jennifer, I came off diamox about 1.5 years ago - I came off gradually but I really don't remember any particular side affects- I came off because I was...
been a while since I have posted a message. I went to see the Nuero-opth yesterday... good news is that he didnt see any papilledema in my eyes. Short of...
Hi Donna, You can have PTC and not have papilledema. A diagnosis of PTC is based mainly on elevated CSF. We all have different symptoms. I've never had...
Does anyone have Kaiser? I'd appreciate a bit of info about your experience with PTC and Kaiser. Will they take the time to figure out what's going on?...
Donna, I agree with Jeanne we all have different effects. I have the problem with my eyes and with my hormones but never had the headackes or anything else....
Hi, I'm Jackie and I have Kaiser. Not sure about anyone else's experience but mine was terrific. They diagnosed me immediately, set me up for routine opt....
WILLIE PITTS
pitts6@...
Aug 3, 2005 8:08 pm
25675
Ok.. as you guys know that I stopped taking all my meds and have been feeling a bot better now because of it.. but I was wanting to know what are the foods...
I can only speak for myself, but I use to have Kaiser and LOVED knowing I had once place to go and stay in the system. Then 2 months before I got sick ours...
Jeanne, My name is Shelly and my son has PTC. We had Kaiser for the first 7 years of his life. He has other problems besides the PTC. He now is 9 years old and...
Hi Penny, What I've heard is fresh foods - nothing processed - I'm trying to get there but it isn't happening very fast! and also avoid high amounts of vitamin...
Donna- I had papilledema when I was first diagnosed and a few times since. I would go to my neurologist and say I think that my pressure is up, he would look...
Hi Denia, thanks so much for your response.. I hope I get to talk to Ralpha.. I want to find out how to avoid these certain foods ..this way I dont end up with...
I'm so glad you all are so understanding... sometimes after I feel better, I then tend to feel guilty about smoking, but somedays it is the only thing that...
Denia, the ingredients list on the Arbonne Int'l web site is kinda vague. Lo Han is xylitol made from some other plant besides birch. My nutritional counselor...
Shelly, I'm sorry you had such a bad experience with Kaiser. Sometimes you've got to bitch and demand better treatment. For our kids we do whatever it...
Hi Jeanne, yes, I thought it was somewhat confusing as well - I don't really think I want to try any of the shakes etc - but possibly the dietary supplement...
Hi Penny, Basically you can eat anything you want as long as its fresh...meats, eggs, veggies, fruits, you know..."real" old-fashioned foods that require...
Denia, my dr. is on my case to lose more weight. I told him to prescribe a personal trainer and chef, like Oprah has, and I'll lose. He said he'd prescribe it...
Hi Jeanne, My friend who I scrapbook with uses her crockpot frequently - she loves this roast recipe she has for the crockpot - I'll have to ask her for it and...
I love my crockpot. I will put a frozen roast, 1/4 water, veggies and season to taste, on the low setting and its done perfect 6+ hours later. If you want...
I was reading your post and when you said Santa Rosa, CA Kaiser, I was surprised. The Santa Rosa Kaiser IS the one that I had such a good experience with and...
Wow, Shaylene, I do live in Santa Rosa, about 5 miles down the road from you. I live off Range Ave. only about 1 mile from Kaiser. We should meet! Stanford is...
Hey Rick, Thanks for the info on the potatos in a crockpot - that is good to know because who wants mushy potatoes! I feel for you with the veterans admin - we...
