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ptc · This is a mailing list for those who suffer from PTC. Family members, friends and loved ones are not only welcome but encourag
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Messages 25265 - 25294 of 28651   Oldest  |  < Older  |  Newer >  |  Newest
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25265
Hello to everyone. I was first diagnosed with PTC when I was 19. It went away until I was 22. Again it went into remission until 2 months ago. I am now 31. I...
Nancy
nancyyyy74
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May 1, 2005
10:26 pm
25266
Hello Nancy, Yes, for me the fatigue and irritability are part of my ptc - but also I found with the diamox I was so tired all the time - I had NO energy - it...
Daniel Mcneill
DE_McNeill
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May 2, 2005
12:31 am
25267
I've taken Diamox since August 2002, and am wondering if anyone who has been on it long-term would be willing to share about their experiences. My ptc...
Ralpha
rstaeger
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May 2, 2005
2:36 am
25268
HI. I have been taking diamox for about the same period of time. I have lost about 45% of my hearing in both ears and I was told that rare instances diamox...
Pam Foote
foxelade47
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May 2, 2005
2:35 pm
25269
Has anyone been prescribed Lasix? Is it better then Diamox. Donna (WA State) ... Do you Yahoo!? Yahoo! Small Business - Try our new resources site!...
Donna Cosey
donnacosey
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May 2, 2005
4:33 pm
25270
I had a terrible day and thought I would come visit this site and write a note to get it off my chest. I was just diagosed in Jan and went on diamox which...
jubeepepper2003
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May 2, 2005
9:23 pm
25271
Hi All, Sorry Ive been away for sometime, Dave has been rather unwell. Im currently fighting with the Hospital over appointments etc etc, its a LONG LONG...
Tracy
mereminx
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May 2, 2005
9:40 pm
25272
Scrap the last request found it!!! Used for Acute Mountain Sickness, Glaucoma....effective in the control of fluid secretion!! ... From: jubeepepper2003 Date:...
Tracy
mereminx
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May 2, 2005
9:45 pm
25273
Ralpha, I am sorry to hear you are having problems - I was unable to tolerate the diamox after about 2 years - especially after my pressure levels were at the...
Daniel Mcneill
DE_McNeill
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May 2, 2005
10:31 pm
25274
Hi Donna, I know that some people have taken just lasix - but for me it was prescribed in addition to the diamox - you might also ask your dr about something...
Daniel Mcneill
DE_McNeill
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May 2, 2005
10:32 pm
25275
Hi Julia, Are you taking a potassium supplement? You should be ( i think) - at least I was prescribed one due to the loss of potassium with the loss of fluid...
Daniel Mcneill
DE_McNeill
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May 2, 2005
10:36 pm
25276
Donna, I take 40 mg. of Lasix every morning--somedays I can tell I really need it, other days, I don't notice any difference. My first neuro explained that...
Ralpha
rstaeger
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May 2, 2005
10:59 pm
25277
Thanks for the note. Actually the spinal tap itself was smooth, it was the spinal headache that I thought would kill me for sure. Wow, never felt pain quite...
Julia Pepper
jubeepepper2003
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May 2, 2005
11:01 pm
25278
Julia, Denia is correct about the potassium--it is essential for all muscles in your body, especially your heart--I take four 750 mg pills each day...two with...
Ralpha
rstaeger
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May 2, 2005
11:15 pm
25279
Tracy, Diamox is the trade name, Acetazolamide is the generic. I take the regular tablets, but have read postings about other preferring the timed release...
Ralpha
rstaeger
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May 2, 2005
11:18 pm
25280
Did they have you lay flat afterwards? Sometimes you need to do that several days and take it really easy - also, were you by any chance having a spinal fluid...
Daniel Mcneill
DE_McNeill
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May 3, 2005
1:00 am
25281
Hello Everyone. It has been a while since I have posted. My mom goes in on Thursday for open heart surgery. I am going to be staying down there with her. I...
Beth
bbailey1804924
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May 4, 2005
12:51 am
25282
You all have our prayers. ((((HUGS)))) Jennifer...
Jennifer Tapp
jlynnetapp
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May 4, 2005
2:01 am
25283
_Living with Long Term Illness_ (http://www.xs4all.nl/~nvwagen/english/) I found this site so helpful. I hope someone else will enjoy it also....
jessysgram@...
sundae99_03820
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May 4, 2005
11:42 am
25284
Hello everyone. We recieved a phone call from the dr last night. they postponed the surgery until friday. I will email when I get home sunday night. Thanks for...
Beth
bbailey1804924
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May 5, 2005
6:57 pm
25285
Has anyone gone through an oxygen saturation level test? My PCP ordered one for me and it will be given to me at my house this coming Monday. I was just ...
CrabbyWithPTC@...
crabbywithptc
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May 6, 2005
1:13 pm
25286
_Diagnostic Tests — Oxygen Saturation Test_ (http://www.health.harvard.edu/fhg/diagnostics/oxygen/oxygenWhat.shtml) Diagnostic Tests — Oxygen Saturation...
jessysgram@...
sundae99_03820
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May 6, 2005
2:35 pm
25287
Hi, E! This website should help you understand what they will do. http://www.health.harvard.edu/fhg/diagnostics/oxygen/oxygenHappens.shtml I had been...
Kim
sombodyzmama
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May 6, 2005
8:28 pm
25288
Hello. It's 7:58 pm on Friday. My mother was taken in at noon and was back out around 5:30pm. She is doing alright. She had the mitral valve replaced and a...
Beth
bbailey1804924
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May 7, 2005
12:00 am
25289
Thank you for the link. It was exactly what I was looking for. E...
CrabbyWithPTC@...
crabbywithptc
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May 7, 2005
9:03 am
25290
Kim, Thanks a lot. I don't know what they are going to do except come to my home instead of the hospital. My PCP was talking about doing a sleep study and this...
CrabbyWithPTC@...
crabbywithptc
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May 7, 2005
9:23 am
25291
My mom decided to take the breathing tube out on her own last night. They left it out for about an hour and then decided that they needed to put it back in. I...
Beth
bbailey1804924
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May 7, 2005
1:53 pm
25292
tracy, myself and sharon live in uk and she has had diamox prescribed to her. where abouts are you and which hospital do you go too. if you need any help dont...
BPHLLPSD4@...
bee4153
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May 8, 2005
6:10 am
25293
Morning everyone. It's 10:18am. We were able to spend 1 1/2 hours with her last night and then we came back this morning. She had the tube out last night. It...
Beth
bbailey1804924
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May 8, 2005
2:22 pm
25294
Hello everyone, I know it has been a while since I have been on here.Life has a way catching up on you..well I just wanted you guys to know that I have started...
Penelope
crimzonbutte...
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May 10, 2005
9:16 pm
Messages 25265 - 25294 of 28651   Oldest  |  < Older  |  Newer >  |  Newest
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